Intractable Pain (IP) Doctors

Posted by cwallen9 @cwallen9, Jul 21, 2019

I just found a guidebook by Dr. Forest Tennant that talks about "Intractable Pain (IP)". Instead of chronic pain, he deals with patients that have unbearable pain every day. He treats it differently than chronic pain. Basically, he believes that opioids are necessary for people with IP. He also has some good advice for dealing with it. Does anyone know where one can find doctors that are IP doctors? I live in central Pennsylvania and there are none around us. I have been dealing with severe, unbearable neurapathy pain for a year, and none of the usual pain meds help (gabapentin, Elavil, Ultram, etc.). The website is at http://www.foresttennant.com. There is a guide in the "self help" tab. I attached the guide.

Shared files

IntractablePainSurvival Dr Tennant (IntractablePainSurvival-Dr-Tennant.pdf)

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Thanks, Colleen. I had no idea that Kratom has all these problems. I will be reading everything you attached. Sometimes my pain is too bad to just rely on Gabapentin. I only take Kratom about once or twice a week, tops, and so far, do not get any addictive cravings, side effects, or mood problems. But I still need to know what I am doing!!!!! So thank you so much. Pain is a monster, and I am always on a quest to feel better. I have even done Scrambler therapy, but the positive effects are beginning to lessen. Time for booster treatments, but so damn expensive. Thanks again for your work in posting all of this. I want to be informed. Do not need to have more problems!!!!!! Lori Renee

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My personal experience is opioids is the only thing that reduces my pain which is very severe and seemingly intractable. Even then, they don't fully eliminate and they come with side effects. On the other side of things, antidepressants and anticonvulsants didn't help at all and produced side effects. By the way 'Ultram' is an opioid. Just less potent than oxycodone etc.

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@colleenyoung

With the mention of kratom in this discussion, I'd like to post this important note from a Mayo Clinic pharmacist:

Kratom is a natural product but it does have significant risks and side effects. Because of these risks the FDA banned import of Kratom in August 2016 and issued a notice of intent to classify 2 chemicals in Kratom as Schedule 1 drugs (the same category as heroin). There are no FDA-approved uses for kratom, and the agency has received concerning reports about the safety of kratom. FDA is actively evaluating all available scientific information on this issue. (2019) https://www.fda.gov/news-events/public-health-focus/fda-and-kratom

Kratom can cause dependence and withdrawl symptoms including aggression, anxiety and other negative psychiatric effects, muscle aches, spasms, tremors, insomnia, fever and upset stomach. It can also cause dangerous slowed breathing and seizures. It can worsen psychiatric disease and may increase the risk of suicide. Kratom can impair liver function. Kratom interacts with other herbal medications including Jimson Weed. It interacts with sedating medications. It has the potential for many other drug interactions because of the way it is metabolized.

For more information see:
– National Institute of Health: Drug Facts, Kratom https://www.drugabuse.gov/publications/drugfacts/kratom
– Center for Disease Control https://www.webmd.com/mental-health/addiction/news/20190411/cdc-americans-are-dying-from-kratom-overdoses#1

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For those of us with pain, there is no help. After reading 60 some posts, I never read one that mentioned if anyone has gone to the Mayo Clinic seeking help. My husband and I went to Mayo Clinic in Scottsdale, AZ. for years until we moved too far away and unable to travel that far. I love Mayo and all the doctors there. I had my knee replacements there 20 years ago and still no problems. I can’t help but wonder what Mayo has to offer. There are people with worse problems than us with pain issues but many with pain are young and could be productive in so many ways if not for pain.
Arlene

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I was diagnosed by my GP about 6 years ago and after he ran out of options he tried to refer me to Mayo in Rochester. I was turned down with a short trite note that they were unable to see where they could be of any benefit over what my family doctor had tried. Found that a little disturbing that my local doctor in a town of 7500 had the knowledge and resources of Mayo clinic but after talking with him again was told that idiopathic nerve issues are a needle in a haystack and Mayo would rather look at cases that are not quite so shot in the dark. His comment was, if the could perform surgery on you with a good chance of an outcome that would be good advertising you'd be in quickly. Good luck, I've not found any reliable relief for the burning and rocks in my shoes feeling and I look at everything new all the time.

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@arlenejc

For those of us with pain, there is no help. After reading 60 some posts, I never read one that mentioned if anyone has gone to the Mayo Clinic seeking help. My husband and I went to Mayo Clinic in Scottsdale, AZ. for years until we moved too far away and unable to travel that far. I love Mayo and all the doctors there. I had my knee replacements there 20 years ago and still no problems. I can’t help but wonder what Mayo has to offer. There are people with worse problems than us with pain issues but many with pain are young and could be productive in so many ways if not for pain.
Arlene

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I tried but unfortunately Mayo in MN turned me down after already being diagnosed with Small Fiber Poly Neuropathy. It is what it is.

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Has there been any recent studies or treatments using Stem Cells

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@kenjolley

Has there been any recent studies or treatments using Stem Cells

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Welcome @kenjolley, I haven't seen any recent studies on stem cell therapy. I would be suspect of any stem cell therapy unless there is some major research behind it and it's not being done by some stand alone clinic. I think it's something not FDA regulated or approved and there is no evidence that it works.

Have you been diagnosed with Intractable Pain (IP)? Have you looked into stem cell treatments or done any research on them?

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