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Internal vibrations still affecting anyone?

Posted by scrappy @scrappy, May 29 4:33am

It’s 5:17 a.m. and I’ve been awake for some time because of the crazy internal vibrations still affecting me over two years after my first and worst Covid case. They absolutely terrify me when they start in the middle of the night when I’m asleep. I can never go back to sleep because I always fear they could be “something else.” They’re in my abdomen, chest, legs, etc., and I always think my heart must be racing, but when I take my pulse it’s not. Please, if you have any recommendations, share them. I am still having severe shortness of breath, but only when standing! My vision is blurred but the ophthalmologist can’t find anything wrong. I’ve been tested and tested by the pulmonologist and have even been to UNC’s long covid clinic for testing. They believe my issues, like for other patients, is a neurological problem caused by COVID. Are the vibrations just more of the same? I feel like I have a buzzer going off in my body right now and it’s nights like tonight that I think I’m going crazy. I’m so sick of this! I know that others have more serious problems than mine but this is really affecting my mental health and I’m hoping someone has had success in stopping their own vibrations and can offer suggestions.

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rstern99 | @rstern99 | Jun 1 11:16pm
In reply to @mikesixtysix "i have it, started in the fingers, got slowly worse over time, spread to the legs,..." + (show)
@mikesixtysix

i have it, started in the fingers, got slowly worse over time, spread to the legs, arms, chest, neck, head... full body tingling/buzzing sort of feeling, with some numbness in areas, and pain underneath, if that makes sense. low dose naltrexone gives me some relief

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What mg of low dose naltrexone have you tried to get it to feel better ? Thanks!

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mikesixtysix | @mikesixtysix | Jun 2 10:27am

the dose is one 1.5mg capsule a day for a week, then two for a week, then three. so the max is 4.5mg daily. i've only gone as far as 2 capsules, and its not a cure either, just takes the edge off.

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debmn | @debmn | 5 days ago

I get waves of what feels like an adrenaline surge with some chills and mild goosebumps. It lasts for 2-3 minutes. My heart pounds and my heart rate goes up to 90-110. I feel drained afterwords. I have these any time of day (6-8 times a day) and can happen at rest or with activity. I’ve had a full cardiac workout and nothing was found. It’s exhausting!

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tls5alex | @tls5alex | 22 hours ago
In reply to @scrappy "It’s so difficult getting people to understand the internal vibrations. My family looks at me like..." + (show)
@scrappy

It’s so difficult getting people to understand the internal vibrations. My family looks at me like I’m crazy! I go through periods of terrible itching all over my body as well…was told it was a histamine issue but other than Benadryl I was given no other recommendations. Sigh.

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I was dx with MCAS. Severe itching and rash on my lower legs. But also rashly patches that would come and go with flushing and heat. I take antihistamines to calm it down. Sounds like you have MCAS

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