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Intermittent fecal/sulfur breath odor
After scouring the web, I'm certain I'm not the only person with this problem, and not the only person who's been told they were imagining it. Anyway, the issue is I have intermittent odors when I talk (yes, I've been to the dentist 10+ times-- all say my oral hygiene is on point and xrays and inspections showed nothing). The only time it's practically non-existent is when I eat an unhealthily low-carb diet. Like others online, I've had CT scans, Barium swallows, endosocopy/colonoscopy, screening for parasites (getting one more from an IDS before crossing that off my list). All showed up negative. I tested positive for SIBO, but after researching that for the past 3 years, I'm certain SIBO is more of a symptom than a primary causal problem. Furthermore, even when I treated SIBO with heavy antibiotics, it did absolutely nothing for my breath-- and yes I was cleared of SIBO after a couple rounds of work. yet, the moment I eat carbs, I still get a "did someone just s*it themselves?" comment.
I guess what I'm getting at is I'm tired of doctors just saying it's IBS and SIBO and then proceeding to do zero investigating afterwards. I want to get down to the root cause of this, but most doctors are either too apathetic or too incompetent to do anything. Are there any researchers who specialize in studying and diagnosing hard to find problems in the GI tract? Between the 3 GI docs, 2 ENTs, 2 NDs and 1 IDS, I just can't take normal doctors anymore. I want my life back and I want a specific root cause so I can work on progressing from there.
Further notes: Diarrhea actually cleared up when I ate junk food and I had zero bloating, albeit the odor remained.
Xifaxan and neomycin did nothing for the odor, nor did the elemental diet. I actually think the elemental diet made the smell as bad or
worse than before.
*******Nitazoxanide********** worked wonders for the month I was on it. Solid stools even with foods that normally cause my ibs to flare up.
It's exactly the reason I felt there was more going on to everything than just SIBO and IBS.
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I would say that once i stop taking those 40mg in the morning.. acid reflux is terrible and thats without even have eaten anything..
I have done this to try and get a reaction.. but nothing
Have you been tested for H. Pylori and SIBO? I've gotten the fart smell as well. I'd lick my lips, and smell fart. I thought maybe I used an expired lip gloss or something, but after cleaning my lips, it was still there....it was my tongue. I tested positive for both of the conditions listed above. I've been on a few rounds of antibiotics, which hasn't helped. In the past, eating only chicken, vegetables, and at least half-gallon of water helped. I think it's something genetic. It might have something to do with MTHFR gene, I've been looking into this. People with this mutation have a problem with b12, I believe. Buttermilk immediately causes a problem; anything with yeast, sulfur, bacteria, or enriched items can cause issues. This is a terrible disease!
I have been having the same symptoms as you and coincidentally for 12 years too. I have seen about 4 GIs, 2 ENTS, 4 dentists etc. I have also done 2 endoscopys, a colonscopy, barium swallow and so many others tests. I have silent reflux which the doctors dispute as reflux tests came back negative twice but am 100% sure I have it especially when I lie down. Hiatus hernia was diagonised but GIs insist that it is not the cause. From my research, I feel strongly that the hiatus hernia could be the cause. There is also somebody who has posted that the problem was solved after he had a surgery for hiatus hernia. Seeing that we both have hiatus hernia and are haing the same symptoms, am more convinced that this is the cause of our problem/long suffering/humiliation etc.
I would be interested in knowing if there are more people having this problem and also diagonised with hiatus hernia.
Have you been checked if you have hiatus hernia?
Have been checked if you have hiatus hernia?
I had at least 3 endoscopies. I'm assuming if I had a hiatus hernia, the doctors would have brought it up after the endoscopes. I could have a sliding one. I think that's the term for one that is intermittent and moves up and down?
I have had 3 scopes and I assume if I have h pylori, that is where they would have seen it.
No sibo test. I've thought about ordering an at home test. I haven't seen a gastroenterologist in years. I just got so frustrated with them and the whole process. The final straw was a doctor telling me she didn't care when I tried to tell her about this problem. Totally shut me down. She was only interested in setting up the scope procedure. My problem didn't fall into the normal acid reflux spectrum so she didn't even want to talk about it.
You would need to take the breath test to find H. Plylori. The scope probably wouldn’t find it. It measures gases, hydrogen and methane, I believe. You will have to blow into a bag, then drink a liquid, wait 15 minutes, and blow in the bag again. For SIBO, you need to take a breath test as well. I didn’t even have most of the symptoms of H. Plylori. I would get occasional abdomen pain, and the fart odor coming from my mouth. If it wasn’t for the odor, I could tolerate the occasional pain.
Have you tried digestive enzymes? My theory is your body isn’t producing enough acid to breakdown the carbs, which allows them sit and ferment in your gut longer, in turn it causes an overgrowth of bacteria. I use to take a supplement with Betaine HCL; it helped a lot, but the company stopped selling it in tablet form in the U.S. Other brands don’t seem to help.