Insomnia

Posted by kaygs @kaygs, Sep 2 4:48pm

I’m wondering if anyone has tips for the insomnia that can come with the Big 3. I’m finding that it’s getting worse the longer I’m on the meds.

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

Not on MAC meds....for sleep I find CBD oil very effective. Vitamin Shoppe discontinued theirs and I found my way to Lazarus Naturals. I get 6.5 hours which seems to be the sweet spot for me. Of course check with doctor first.
https://www.lazarusnaturals.com/products/sleep-cbd-oil-tincture?_pos=1&_sid=4bfbf7553&_ss=r&variant=47973028200741

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Profile picture for rozy288 @rozy288

Been on Ambien 5 then 10 mg for years . 10 mg wasn’t working and I was still waking up after 2 hrs . I started breaking in half , 5 mg at bed about 8 pm & 5 at first wake about 11 pm .
Now that doesn’t work .
I tried The 12.5 mg ER Ambien & I couldn’t fall asleep 💤 for hours after taking it & then woke every 1.5 hrs .
Then I tried .5 at bed then ER at 1 st wake . Didn’t help . I’m averaging 3.5 hrs broken sleep a night .
I’ve tried Lunesta , & Some others through the years . Nothing helped . I tried Melatonin gummies w/ it . I tried CBD/ w tiny bit of THC gummies that are sleep gummies ( have other natural ingredients in it ), they helped a bit but not long .
I have many chronic digestive illnesses daily & nightly too . I also just lost my love of my life my rock 🪨 my husband of 23.5 yrs , 4 months ago suddenly. I’m such a mess , so anxiety filled ( take low dose anti anxiety med for a long time too ).
I’m self isolating , I’m exhausted all day , I can’t eat or sleep 💤. Can’t nap 💤 in day , never could .
I’m a mess .. so depressed 😔. Hating life .

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@rozy288 I’m sorry you’re having a tough time. I hope you are open to seeing a counselor about all of this. We all need a little help dealing with life now and then.

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I talked to Therapist for the last 10 weeks. He’s been gone four months. I do a Tele visit every week plus my nurse practitioner psychiatrist for the last 2 1/2 years. I talked to now more frequently about every five weeks. It’s not helping me at all. I have too many digestive issues and too much anxiety and too much self isolation and all the stress that came with the move and the sudden death of my love in my life my rock my husband. I just don’t know where to go from here. I’m so lost. I’m losing a lot of weight like I said, I can’t eat and I don’t want to and my digestive issues are off the charts plus my PVCs and any medication that I have tried or I do take now isn’t even helping. My kids are wonderful and the close by but I told you I miss our home and I miss our life of 23 years or more together. I miss him. I love him and he love me and you have been struggling with all these health issues and he never ever complained. I never been annoying. You thought he would go before I would. I’m only 64 and he just was 66 when he died I was 63. It was June 2. He died in my arms while the ambulance was on their way thank you for praying for me and I have 1 million people praying for me, but none of the prayers are working. I just want this world to be over with if it wasn’t for my dogs then I have to take care of. I would’ve been gone by now and my kids cannot hear that because I have a nine month old granddaughter and a grandson on the way. I just don’t care about anything and I hate living here And I hate my life. I’ve been through the worst amount of stress that anybody could tolerate and it’s every single day all day without one hour off.

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Profile picture for rozy288 @rozy288

I talked to Therapist for the last 10 weeks. He’s been gone four months. I do a Tele visit every week plus my nurse practitioner psychiatrist for the last 2 1/2 years. I talked to now more frequently about every five weeks. It’s not helping me at all. I have too many digestive issues and too much anxiety and too much self isolation and all the stress that came with the move and the sudden death of my love in my life my rock my husband. I just don’t know where to go from here. I’m so lost. I’m losing a lot of weight like I said, I can’t eat and I don’t want to and my digestive issues are off the charts plus my PVCs and any medication that I have tried or I do take now isn’t even helping. My kids are wonderful and the close by but I told you I miss our home and I miss our life of 23 years or more together. I miss him. I love him and he love me and you have been struggling with all these health issues and he never ever complained. I never been annoying. You thought he would go before I would. I’m only 64 and he just was 66 when he died I was 63. It was June 2. He died in my arms while the ambulance was on their way thank you for praying for me and I have 1 million people praying for me, but none of the prayers are working. I just want this world to be over with if it wasn’t for my dogs then I have to take care of. I would’ve been gone by now and my kids cannot hear that because I have a nine month old granddaughter and a grandson on the way. I just don’t care about anything and I hate living here And I hate my life. I’ve been through the worst amount of stress that anybody could tolerate and it’s every single day all day without one hour off.

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@rozy288 I'm so sorry to hear what a rough time you're having. Have you tried grief counseling? Losing your husband is a terrible trauma and that alone is difficult and you have to deal with health issues, too. I'm not sure what's available in your area, but Hospice could probably recommend someone or a group.
If you're considering self harm, tell your therapist. Sometimes inpatient stays help to get your meds adjusted to help you . This is just a thought since you sound very stressed and depressed. Disclaimer-no expertise in mental health, but your MH professionals should know how bad you're feeling.
Hugs to you.

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Profile picture for pacathy @pacathy

@rozy288 I'm so sorry to hear what a rough time you're having. Have you tried grief counseling? Losing your husband is a terrible trauma and that alone is difficult and you have to deal with health issues, too. I'm not sure what's available in your area, but Hospice could probably recommend someone or a group.
If you're considering self harm, tell your therapist. Sometimes inpatient stays help to get your meds adjusted to help you . This is just a thought since you sound very stressed and depressed. Disclaimer-no expertise in mental health, but your MH professionals should know how bad you're feeling.
Hugs to you.

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@pacathy yes I tell them everything on my mind .
I’m still so confused & unwell .
Tk u

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Profile picture for rozy288 @rozy288

Been on Ambien 5 then 10 mg for years . 10 mg wasn’t working and I was still waking up after 2 hrs . I started breaking in half , 5 mg at bed about 8 pm & 5 at first wake about 11 pm .
Now that doesn’t work .
I tried The 12.5 mg ER Ambien & I couldn’t fall asleep 💤 for hours after taking it & then woke every 1.5 hrs .
Then I tried .5 at bed then ER at 1 st wake . Didn’t help . I’m averaging 3.5 hrs broken sleep a night .
I’ve tried Lunesta , & Some others through the years . Nothing helped . I tried Melatonin gummies w/ it . I tried CBD/ w tiny bit of THC gummies that are sleep gummies ( have other natural ingredients in it ), they helped a bit but not long .
I have many chronic digestive illnesses daily & nightly too . I also just lost my love of my life my rock 🪨 my husband of 23.5 yrs , 4 months ago suddenly. I’m such a mess , so anxiety filled ( take low dose anti anxiety med for a long time too ).
I’m self isolating , I’m exhausted all day , I can’t eat or sleep 💤. Can’t nap 💤 in day , never could .
I’m a mess .. so depressed 😔. Hating life .

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@rozy288 I wrote the below before I saw the other suggestions and responses re counseling. Now after reading more of the back and forth I do really think group grief counseling may be helpful for you. There is such a profound loneliness in these moments and in my experience the presence of others who are navigating similar losses helps to reconnect us to something greater than ourselves. I am not a person of faith but for those that are, I assume attending services provides a similar experience. I would really encourage in person groups (as opposed to online) if possible, as there is something energetically more powerful about connecting in person.

I am so sorry to hear about your husband. These periods of profound grief are some of the most challenging. It sounds like you have a history of sleep challenges made worse by your grief. Have you tried grief counseling? It was challenging for me because I too was doing a lot of self isolating but I was part of a couple grief groups (in person) and I found just the act of forcing myself to clean up, get out and sit with others help to slowly shift things for me. It’s not a quick fix but looking back I can say it was an important part of my path forward.

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I am not on antibiotics. I take one capsule of Apigenin every night when going to bed. It allegedly helps with sleep and with Pseudonomas. I fall asleep quickly.
Best wishes of great health to all of us!

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Profile picture for gigiv @gigiv

I am not on antibiotics. I take one capsule of Apigenin every night when going to bed. It allegedly helps with sleep and with Pseudonomas. I fall asleep quickly.
Best wishes of great health to all of us!

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@gigiv what’s is it for? what mg are u on? did doc prescribe this. ? appreciate your reply.

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Profile picture for lizjlb @lizjlb

@gigiv what’s is it for? what mg are u on? did doc prescribe this. ? appreciate your reply.

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@lizjlb, it's not a prescription, it's a supplement. It's a flavonoid, like Quercetin and others. There are several articles on the NIH website, about its action on Pseudomonas aeruginosa: it inhibits virulence factors and supresses the formation of biofilm. I was looking for something else on the NIH and by happenstance, found those articles. I figured trying it as a supplement could not hurt. I also take Pterostilbene, which has vast antimicrobial properties, I seem to be doing well on them both. I mentionned Pterostilbene to my pulmo., he looked it up briefly and said I don't know if it will help, but I don't think it can hurt, you may take it. I did not ask about Apigenin, but I am taking it every night, and quite frankly, i like it. However, Pterostilbene does tend to increase LDL cholesterol. And it is not advised to take too much Apigenin, as it could affect immune system. I take one capsule of 75 mg Apigenin every night. But, talk it out with your physician. It works well for me, but we are all different. My only meds are Advair and Azelastine nasal spray, nothing else at all. if you take meds, there could be interactions, who knows? Look it up, there is plenty of info on it. If you are on antibiotics, it allegedly makes the antibiotics more effective.
Best wishes of great health to all of us!

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