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Inoperable Meningioma: not feeling support by my partner
Hey all. I read all of your stories yesterday afternoon. It struck me how strong we all are, dealing with this scary thing! That said, not feeling it this morning. Halfway through 28 fractionated treatments, actually going for #15 today. Very tired, started having some radiation burning last week that affects my tounge and throat. Nothing tastes like much either. I know this will pass. Currently the worst thing is lack of support from my husband...he actually started a fight with me about how long it takes me to get back and forth to treatments, and where am I am going? What am I doing? Holy f*CK, man. Close to an hour drive each way, through a college town that is a bottleneck with traffic. After tx I get some lunch, stop by grocery store, get gas, go the drugstore, whatever. Typical errands. So it puts me out of the house for a few hours in the afternoons. He keeps asking me where I go and what I do...despite me telling him. Even showing receipts, which is ridiculous but thought it might help with whatever weird ideas he has. He got even madder and has been being an absolute cold jerk the last few days. I asked him if he was worried about me getting him from treatment, safety concern? Was hoping that's where it came from but he denied this. So besides the worries about future of my brain and dealing with side effects from the steroids, tx, he appears to have made up his mind that I'm doing something nefarious. All I'm doing is getting through the day best I can. He's very demeaning, insulting to the point where it feels my very existence is not ok. Anyway, ack. Just feeling very stressed and sad the past few days. Thanks for reading.
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@randallshields56
Randy.. Thanks so much for responding and your opinion. They are talking January/February surgery. I haven’t had any seizures yet, I live alone. They say these are slow growing but I like the 3 month MRI as well. Two years healing is a long recovery time. Do you mind if I ask how old you are? What size was your tumor? I will pray your prayer is answered.
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1 Reaction@dollyjaneprenzel well it would have been great to just get out on my own and enjoy, just a problem withdriving. have to wait a year in Virginia with seizures to be able to drive. just going to leave that where it is. still had a good birthday. got some shirts from family and a couple of s hoes. it works. hey still here and doing ok. that counts. have a blessed day.
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1 Reaction@as72 well thank you for the prayer. mine was a little more complicated , i am 69 widowed and the size was walnut size right frontal lobe, cancerous and lung cancer too. was given radiation and chemo and now tests show no cancer. the Doctor had to go back in to repair a brain bleeder but went in thru the original site . what took so long to heal for me was the seizures , im on the road to recovery as we speak, but god- no new seizures and im doing 100 sit-ups on the edge of the bed, two other routines daily one for using bands for upper body, the other legs . ride a exercise bike 10 miles a day and walk whenever i can get it in so i am not tied down to just lying around. just cant drive yet, ill get my license when god thinks I'm ready and be able to go out and do things. any more questions feel free to ask.
@as72 I keep thinking I'm getting replies to my thread, but it looks like others have gotten mixed in. You may get more info by starting your own, specific to you. I wish you the best-
@as72 how old are you and how old do you want to get too. me as old as i can give the family's. feel free to call me i believe my number is in there if not and i can let you have it. i can help you with a lot of same things i had to go trough. was outside fixing to get critter bowls for this evening, we feed the wildlife that lives around here.
@randallshields56
So happy for your apparent recovery, Randall Shield. All I can do is pray for your full recovery, including driving, and I will. When I couldn’t drive, I went nuts!
Dolly
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3 Reactions@dollyjaneprenzel
But it does sound like you are doing well. Those exercise routines really help.
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2 Reactions@dollyjaneprenzel understood completely. im a retred truck driver i drove almost27 years.
@randallshields56
Sorry, if I am replying to someone else by mistake. Think I may get confused on here. Thought I was replying to Randall.
@as72 you are, and don't be confused, we are good. you asked how old i was and i answered and asked you the same. curious in the kind way. will be getting ready for bed shortly have to go to town tomorrow with my daughter. i am going to get worked on and she's getting a massage.
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