1. < Autoimmune Diseases

Information Sojgren's Syndrome

Posted by penn @penn, Feb 28 10:21am

I have Sojgren's Syndrome and Small Fiber Neuropathy.
My question, I understand S.F.N about the pain and where it goes but Sojgren's understand the dry areas but how does it affect the body???
I have so much pain everyday!!! HELP

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

Mentor
John, Volunteer Mentor | @johnbishop | Feb 28 2:54pm

Hi @penn, I'm sorry you are having to deal so much pain everyday. I'm not sure if you have seen the Sjogren's Foundation but they have a lot of information that you may want to look at to see if it might provide some suggestions to help manage the symptoms.

-- Resources: https://sjogrens.org/understanding-sjogrens/resources
-- Treatment: https://sjogrens.org/understanding-sjogrens/treatment

There are also quite a few other discussions on Sjogren's and Neuropathy including the one you started below.
-- Managing Small Fiber Neuropathy, Sjogren's, Hashimoto's: https://connect.mayoclinic.org/discussion/small-fiber-neuropathy-sojgrens-hashimotos/

Here's a link to the list of discussions and comments from members on Sjogren's and neuropathy - https://connect.mayoclinic.org/search/discussions/?search=sjogren%27s%20and%20neuropathy.

REPLY
1 reply
penn | @penn | Feb 28 8:13pm
In reply to @johnbishop "Hi @penn, I'm sorry you are having to deal so much pain everyday. I'm not sure..." + (show)
@johnbishop

Hi @penn, I'm sorry you are having to deal so much pain everyday. I'm not sure if you have seen the Sjogren's Foundation but they have a lot of information that you may want to look at to see if it might provide some suggestions to help manage the symptoms.

-- Resources: https://sjogrens.org/understanding-sjogrens/resources
-- Treatment: https://sjogrens.org/understanding-sjogrens/treatment

There are also quite a few other discussions on Sjogren's and Neuropathy including the one you started below.
-- Managing Small Fiber Neuropathy, Sjogren's, Hashimoto's: https://connect.mayoclinic.org/discussion/small-fiber-neuropathy-sojgrens-hashimotos/

Here's a link to the list of discussions and comments from members on Sjogren's and neuropathy - https://connect.mayoclinic.org/search/discussions/?search=sjogren%27s%20and%20neuropathy.

Jump to this post

Thank You Again JOHN, I APPRECIATE ALL YOUR HELP!!!

REPLY
j77 | @j77 | Mar 3 8:36pm

I think I might be in your same boat, but I can't even get a diagnosis of Sjogren's yet. I have had a few positive ANA's with a high low speckled pattern of 1.80
I did have a slightly abnormal EMG which showed the possibility of Autoimmune, Small Fiber Neuropathy and several other diseases. Of Course the Neurologists don't look into anything so I have been doing so much research on my own. Do you have trouble walking and a weak torso especially pelvis and Diaphram? I also have weak hands, fingers, wrists, ankles, toes and feet. I have pain everywhere and inflamed big upper arms and legs and extreme lower back pain. I also have the extremely dry eyes, mouth, sinuses, skin, hair and trouble swallowing. Do you happen to have NeuroSjogrens? I think this was possibility brought on by covid for me. I also am insulin resistant now, but not diabetes. So I guess a metabolic disease is involved too. I was an athlete before all of this came on. I have had thyroid disease for a long time with no major issues.

REPLY
penn | @penn | Apr 8 7:24am

Hi, I never heard of SOJGRENSNEURO?
Yes I have almost the same as you. Rheumatologist told me there is nothing for SOJGRENS to take! That was bad news. Rheumatologist had take extensive blood work. My kidneys showed something, now have to have that checked! My poor husband. It's affecting him also. He want to go out with our friends for a nice meal but I can't go! Sitting hurts so much because difficult moving bowels!!! Like to know what ANCESTER did I get AUTOIMMUNE DISEASES!

REPLY
Please sign in or register to post a reply.