ineffective esophageal motility disorder and electric shock sensation

Posted by Cam @tryingtofindanswers, Jul 29, 2018

I've been dealing with swallowing issues for over a year and a half now. They began after a course of beta blockers. After two manometry tests, 3 barium swallows and two endoscopies, i've been diagnosed with ineffective esophageal motility disorder and a sliding hiatal hernia. I also have pretty bad acid reflux. I have trouble eating anything that isn't liquid now. The only solids I can eat are saltine crackers, graham crackers and shortbread cookies, basically anything that's a meltable solid. As part of this issue, i get what feels like random electric shock sensations over my chest. They are quick and usually are a result of how I'm sitting or something I've eaten that's more solid. My heart has been ruled out, so these sensations are coming from the esophagus, i assume. Has anyone experienced this sensation as part of esophageal motility issues or hiatal hernia? Also, just doing another random check-in to see if anyone has ever been successfully treated for esophageal motility disorders. I sure do miss the luxury of solid food. Curious as to what doctors at mayo are good to see about esophageal motility disorders that are not achalasia. Thanks!

Hello @kaykay729. Have you considered a second opinion if the diagnosis just doesn't seem right based on your symptoms?

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@amandajro

Hello @kaykay729. Have you considered a second opinion if the diagnosis just doesn't seem right based on your symptoms?

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The SIBO diagnosis was found with a boost on the small intestine during an EGD. I don't disagree with that diagnosis but I don't have the symptoms like I read about other people having. Now I am diagnosed with Ineffective Esophageal Motility with the doctor telling me nothing can be done about it. I would like to find other people that have this so I can understand how to eat and maintain caloric intake and in fact if it's true that nothing can be done.

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