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@tryingtofindanswers

Posts: 7
Joined: Aug 10, 2017

ineffective esophageal motility disorder and electric shock sensation

Posted by @tryingtofindanswers, Sun, Jul 29 3:33pm

I've been dealing with swallowing issues for over a year and a half now. They began after a course of beta blockers. After two manometry tests, 3 barium swallows and two endoscopies, i've been diagnosed with ineffective esophageal motility disorder and a sliding hiatal hernia. I also have pretty bad acid reflux. I have trouble eating anything that isn't liquid now. The only solids I can eat are saltine crackers, graham crackers and shortbread cookies, basically anything that's a meltable solid. As part of this issue, i get what feels like random electric shock sensations over my chest. They are quick and usually are a result of how I'm sitting or something I've eaten that's more solid. My heart has been ruled out, so these sensations are coming from the esophagus, i assume. Has anyone experienced this sensation as part of esophageal motility issues or hiatal hernia? Also, just doing another random check-in to see if anyone has ever been successfully treated for esophageal motility disorders. I sure do miss the luxury of solid food. Curious as to what doctors at mayo are good to see about esophageal motility disorders that are not achalasia. Thanks!

Liked by Jamie Olson

REPLY

Hello @tryingtofindanswers and welcome back to Connect.

It has been a while since you last posted. I am sorry that you are still dealing with the same problem of difficulty eating, swallowing, etc. and now even have a new symptom of the shock-sensation over your chest. You must be very frustrated.

As I recall from your previous posts you were going to look into visiting a Mayo facility. Were you able to get more information about that? Also, did you ever look into speech therapy for assistance with the swallowing problems?

I looked on Mayo's website and I saw this link, https://www.mayoclinic.org/biographies/vela-marcelo-f-m-d/bio-20111414. This doctor deals with motility issues. However, you would have to call to see if he would be able to assist with yours.

I appreciate your checking in with Connect again and I hope that you continue to post and keep us updated on how you are doing.

Teresa

Liked by Jamie Olson

@tryingtofindanswers I have had swallowing issues for many years. I am able to eat soft cooked food.. you could mash it with a fork and it would be baby food. I can also eat tender meats. I cannot eat white potatoes nor most breads. I cannot swallow a saltine, but can swallow Ritz crackers.

I have had a sliding (paraesophogeal) hernia that caused many problems (I am hoping it does not become stubborn again). Here is a small part of my story (too long for here and there are no ads that I am aware of at my blog): http://zarogasnook.blogspot.com/2015/08/a-long-time-passing.html .

I have achalasia and Barrett's esophagus now. After my last suregery in 2015 I was told I would have chest pains and not to worry.. it is not my heart. The thoracic surgeon said I would probably have the pain the rest of my life. The pain comes when I have eaten a little too much or with exercise or trying to do household chores.

My esophagus spasms in two places. First at the beginning of my esophagus and second as it enters my stomach. Sometimes it takes a while before food will enter my stomach and backs up onto my esophagus. Sometimes I do not realize it has done this until I try and drink something and it will not go down and the food will then start coming up. The esophagus is suppose to squeeze the food down and with me the food just drops at the start of the esphagus down to my stomach.

Dilation of my esophagus.. so far.. has helped me with swallowing, but after about 18 months it gets about impossible to swallow again. I think there are surgeries that will sometimes help, but I am not to that point yet.

I can empathize with you. I have a been suffering from GI problems ever since March 2003 I had the Gastris Bypass surgery. I won’t make this long..so I’ll just post recent issues. I was diagnosed with Gastroparesis about 2-3 years ago and Vagus Nerve Dysfunction 2 years ago, which I’ve probably had longer then that. I almost died in 2015 because I couldn’t eat or drink without vomiting. I had 2 feeding tubes placed and lost 70 lbs. within 2 1/2 months. I couldn’t tolerate the feedings either. My general surgeon who has operated on me multiple times I have been with the past 10 years. He decided the only option for me was to reverse the gastric bypass. It was pure hell post surgery and not a day goes by without nausea, vomiting, abdominal pain and the Esophageal spasms. Those spasms make you double over in pain, it was if I was having a heart attack. I’ve been told there is no fix for the spasms. There is no fix for the Vagus Nerve Dysfunction either which that’s pure hell I have to live with the rest of my life. Symptom management is basically all I can get. I had a hell or myotomy in 2006 which is where they removed the lower region of my esophagus. I’ve had my esophagus dialated more times than I can remember, I’ve had those Botox injections near my pyloric sphincter which helped with my Gastroparesis for a few months. I’m sorry for going on a rant. If you need someone to talk to please reach out.

Michelle

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