Incidental find 7mmx6mm partly calcified meningioma

Definitely see a neurosurgeon about this!

badgie: I had surgery 16 months ago to remove a meningioma in my sphenoid wing. Yes, definitely, the symptoms you listed could be from the meningioma. I also had eye issues, and left sided facial discomfort. Depending on where the growth is located it could be the reason for your memory loss. The symptoms we experience are very much tied to the location of these usually benign tumors. It is in your best interest to see a neurosurgeon as he is the expert.

Thank you, I rang the secretary and asked had I been referred and she said no, the endocrinologist said just scan this onto this lady’s records. I couldn’t believe it! She said so do you want to see a neurologist?? I said of course I do, I have a tumour! Unbelievable, because the neurologist said he doesn’t think it’s causing me problems after looking at the mri it doesn’t mean put the records in the drawer and lock it. Maybe I should go private??

I hope you are on the mend now. What size was your tumour?

I am totally fine post-craniotomy for a sphenoid wing tumor that was a little over 2 centimeters. I am currently on "active surveillance" for two other meningiomas. One is 8 mm. and the other is 6mm. They haven't shown any growth in 3 years so that is good. I'm not having any symptoms from their presence so am thankful for that.

@mkoch , How big was your meningioma? How was it after surgery? I just diagnosed with 2.2x 2 calcified meningioma , front lobe 4 days ago. I’m terrified! I have weakness on my left arms, legs and face. Blurred vision, headache and feeling of passing out. I’m so worried about this I might end up on surgery and I don’t like surgeries! 🙁

The radiation oncologist measured it out on his computer as 2.7 centimeters but the surgery report stated it as a little less. Generally, the frontal lobe is easier to access meningiomas than the sphenoid wing, which is where my benign tumor (meningioma) was. So if surgery is recommended (craniotomy) it isn't the end of the world. If you read back through the many prior posts on this forum you will find that most people posted the recovery wasn't too bad. The only pain medicine I was on after the surgery was tylenol. And I didn't take it after leaving the hospital in 2 days because I didn't need it. I don't think any of us likes having surgery scheduled; My craniotomy was the 8th surgery I've had over six decades of life and I will say it was the first time I woke up not feeling nauseous. So I evidently had the best anesthesiologist of my life at UCSF. Your symptoms seem more severe than mine. The main reason I had to have mine removed was because it was encroaching on my optic nerve. As you've probably read on this forum the next step is to consult with a neurosurgeon. If he/she doesn't seem up front about answering your questions or you feel he/she isn't explaining things thoroughly then you should meet with another neurosurgeon as well. I know this is a shock but meningiomas are slow growing and you have time to go through all the steps to find a neurosurgeon you feel comfortable with. He/she will then most likely advise active surveillance (which requires an MRI every 6-12 months to monitor the meningioma's growth) radiation, or surgery. I wish you well on this journey none of us enjoys being part of.

@badgieboo66, if you would like to consider a second opinion at Mayo Clinic, here is how to get started: http://mayocl.in/1mtmR63

Have you been able to be referred to a neurologist in the meantime? How are you doing?

I would see a neurosurgeon, absolutely. Better to be safe, than sorry. I was already seeing one for my migraines. Knew him from working in the hospital and knew he was the best neurologist in many, many, many miles. So, when getting to see a neurologist for my migraines. Been seeing him and his practitioners for years now so when I suffered a concussion with bizarre symptoms, I got in to see him quickly. Incidental find is a left temporal meningioma. I feel that I'm in the best care possible for whatever comes. Whether we 'watch & wait', surgery, or med manage, etc., I know I won't have to go to anyone else about it, and he is the best to do all of it.

Hi, sorry only just seen this reply. Just read your story, very interesting. How are you doing now?

I requested to see my endocrinologist which happened two weeks ago. He was the one who sent me for a mri to check my pituitary gland, to do with another condition I have. That’s where this lesion showed up so had a MRI with contrast and he said it was only small, partly calcified so shouldn’t be causing eye pain and headache. He has now referred me to a neurosurgeon as urgent and the wait time is 16 weeks. I even went to have my eyes tested and my glasses needed tweaking but couldn’t see anything else. I still have symptoms so I’m confused really. I’ll just have to wait. Thanks for asking and I hope you are doing ok?? Michelle 😊