Improving neuropathy without spending a fortune - What actually helps?

Posted by lorciolfi @lorciolfi, Mar 19 6:15pm

I’ve spent a ton of money trying to get rid of or easing my neuropathy with no results. Has anyone had any luck with this?

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suetex | @suetex | Mar 26 10:17am

I have several autoimmune diseases and a couple of cancers but I am posting for my husband who has neuopathy much worse than I do. I'll let the mentors decide whether this should be posted as it involves buying from a THCA dispensery. He asked for a blend for pain and sleep. And it worked

For the first time in ages he was easily able to trim his toenails and enjoyed a sitting meditation that he used to do daily. Just thought I would pass it on. It isn't for everyone.

jamessaxo | @jamessaxo | Mar 26 6:35pm

In reply to @jchet "10 tablets daily? Has your dr approved if this? What strength is 1 tablet?" + (show)

Jchet, Have not told Dr.
The tiny tablets of METHYLcobalamin are only 50 micrograms.
Anyway, since seeing a TN specialist last week I am now taking 50 mg liquid nightly cabamazepine for a week. Next week , morning and night.
3 rd week, double, 4th week 200 mg twice daily.
Cant understand why so much. I can now brush upper teeth without pain. Only very slight twitch when chewing on right. Perhaps its to try to get the body used to it, so as to be ataxai free as I suffered when on 200mg daily. I fear liver damage after a few months on cabama. Still taking methylcobalamin, but only 150 mcg morning and 150 at night. Thats to try and rebuild missing myelin from the trigeminal nerve. Excess B12 gets readily removed in urine.
The specialist said he would refer me for an MRI. No sign of that yet.
Good luck with yours. James 82 NZ

iredo4u2 | @iredo4u2 | Mar 26 9:09pm

In reply to @jchet "10 tablets daily? Has your dr approved if this? What strength is 1 tablet?" + (show)

10 a day seems excessive. Was your B-12 really low? Thanks

cariloo | @cariloo | Mar 26 11:29pm

I say this wouldn't work for most people because most people have jobs, families and other responsibilities. I believe that by the time PN becomes a problem, a large majority are in their senior years, with other medical issues. Just don't have the amount of time it requires on a daily basis or time to learn what has taken you decades to learn. It's not about money, it's about priorities when your time is limited. I admire you for what you've done, but as I said, your full throttle approach would not be practical for most people.