Improving neuropathy without spending a fortune - What actually helps?

Posted by lorciolfi @lorciolfi, Mar 19 6:15pm

I’ve spent a ton of money trying to get rid of or easing my neuropathy with no results. Has anyone had any luck with this?

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I've been dealing with neuropathy in my feet for 10 years, and it's only progressed and gotten worse during this time. My last neurologist did every test available on me, and everything was "normal". After almost 3 years of time seeing him, he gave me the diagnosis of idiopathic poly neuropathy, and said he couldn't do anything more for me. Gee thanks.
It took my GP to prescribe gabapentin to try and dull the pain in my feet. I've been taking it for several years now, and my dosage has been raised to 3600mg a day now, the highest dosage usually allowed. The pain is barely tolerable on a good day, and can be terrible on a bad day.
I'm also taking 1200mg of alpha lipoic acid a day after my doctor suggested it, and it helps, a little.
The point I'm trying to make is this, you might not be able to do anything to help improve how you experience your neuropathy on your own. More than likely, you'll need to talk to your doctor(s) about what/how you're feeling and see what they would prescribe to help lessen your pain.

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@tracydun

12 years and have tried Lyrica 300 mg once a day and Cymbalta 20 mg once a day and vibration therapy compression therapy and electric therapy.

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Which one works the best? I was just changed to Lyrica from Gabapentin.

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Gabapentin did very little for my neuropathy. I went to a pain interventionist who suggested a Spinal Cord Stimulator. It was a very quick outpatient surgery. I’m now pain free. I went back to yoga, walking and will start water aerobics the first of May. I have to recharge the stimulator every 10 days while watching a TV show or I can wear a belt with the charger in it and cook dinner.
I’m thankful that I had the SCS put in and it works.

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I found methylcobalamin stopped all my trigeminal neuralgia. About 10 tablets daily . Dissolved under tongue. That's the most effective form of B12. Found out on Google. Stopped taking cabamazepine because I felt drunk and unsteady walking ( ataxia,)Go for it. James. 82 NZ

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@dlydailyhope

@lorciolfi
Have you tried prescription medication like Cymbalta/duloxetine and Gabapentin or Lyrica?

Are you working with a pain management specialist and/or neurologist to treat your neuropathy?

You may need to consider nerve ablation, pain pump or stimulator depending on which nerves are damaged.

Have you had an EMG/nerve conduction study, small fiber neuropathy skin punch biopsy, and myelogram? Do you know which nerves have been damaged?

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Has anyone tried rub on creams that actually work?

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@lorciolfi

Has anyone tried rub on creams that actually work?

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@lorciolfi
I have tried a few nerve pain creams and they did help some. Tried different brands that contain either lidocaine or capsaicin. Need to be careful to wash hands after applying capsaicin so you don’t get it in eyes, nose or mouth.
https://www.verywellhealth.com/neuropathy-creams-5097362

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@sandrastaggs

Gabapentin did very little for my neuropathy. I went to a pain interventionist who suggested a Spinal Cord Stimulator. It was a very quick outpatient surgery. I’m now pain free. I went back to yoga, walking and will start water aerobics the first of May. I have to recharge the stimulator every 10 days while watching a TV show or I can wear a belt with the charger in it and cook dinner.
I’m thankful that I had the SCS put in and it works.

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Which spinal cord stimulator did you get?…so happy it’s working for you:-)

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@felicelinda

Which spinal cord stimulator did you get?…so happy it’s working for you:-)

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Medtronic’s Spinal Stimulator has been amazing in reducing my pain of neuropathy. The surgeon or interventionist puts the Spinal Cord stimulus in during a Buick surgery where you are sedated. This occurs after you have a trial period to see if it works. It is extremely important to have a Good Medtronic technical person to help you find the best settings or milliamps that reduces your pain.

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@linda6101

Which one works the best? I was just changed to Lyrica from Gabapentin.

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I take both

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Low dose naltrexone haloed me with pain as did R- ALA. I take 4.5 mgs of naltrexone but built up to that level.

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