Immunotherapy: How many lung cancer patients are 5 yrs post diagnosis?

Posted by stormmayo1 @stormmayo1, Feb 6 12:16pm

How many lung cancer patients here have lived beyond 5 years with Stage II, III, or IV non small cell lung cancer??

Interested in more discussions like this? Go to the Lung Cancer Support Group.

@sanyogita15

Hi People, I am new to the group, am from Bangalore, India and recently got robotic done for Stage 2 lung Cancer. Chemo to begin next month. Anyone with the same stage.

Jump to this post

Hello Sanyogita15,
There are a number of us on this thread who have been diagnosed as stage 2, had surgery, and then chemo. Have they completed genetic testing of your tumor and discussed the whole chemo and subsequent treatment plan?

REPLY

Hi People, I am new to the group, am from Bangalore, India and recently got robotic done for Stage 2 lung Cancer. Chemo to begin next month. Anyone with the same stage.

REPLY
@lls8000

Hi @3122, I hope your husband is tolerating the immunotherapy, and that it will be effective for him with minimal side effects. Here's a link to another discussion specific to mesothelioma and immunotherapy:
https://connect.mayoclinic.org/discussion/any-information-on-biphasic-mesothelioma-response-to-immunotherapy/
Was he diagnosed recently? Is the immunotherapy his first treatment?

Jump to this post

My hubby has had 1st treatment and 2nd one scheduled for 26th Febuary. No side affects as yet. 3rd treatment in March then a scan to see if there is any change. At best we are hoping that cancer hasn't grown or spread.

REPLY
@maddie06

I’m coming up to my 5th year on March 6th when I was diagnosed with SCC. Still receiving immunotherapy once a month.

Jump to this post

That's an encouraging message - 5 years! Which immunotherapy do you take? Are the side effects manageable? How are you doing?

REPLY

It has been 13 years since my husband was diagnosed with Stage 4 lung cancer. However, he received Keytruda treatments and almost died. He got Pancreatitis which is a known side effect of Keytruda. It was because of our very good primary doctor and prayers, that he got to the right specialist and after a long battle, my husband was fine. However, he says he will never have another Keytruda treatment. The doctors didn't like that decision but it is my husband's body and money! (Keytruda cost $25,000 per infusion! It's probably more now!) He received two infusions per month. That was 6 years ago. My husband is doing great! He's 82 and leaf blows the yard, trims trees, carries heavy garbage bags to the dumpster, drives the car and fixes breakfast, lunch and dinner! We prayed a lot and our prayers were answered.
I would suggest doing as much research on Keytruda as you can before you make a decision. Don't just take what happened to my husband as the only result. Everyone is different when it comes to medication. Once you have a lot of information, then you can decide what is best for you. Pray about it and God will direct you.
I'll remember you in my prayers.
PML

REPLY

I've added links to other discussions below regarding immunotherapy and side effects. Some members have mentioned significant colitis and pancreatitis. I’m sure your doctors will be watching closely for any issues but be sure to speak up if/when you experience anything that seems out of the ordinary. Many people can benefit from immunotherapy.
https://connect.mayoclinic.org/discussion/immunotherapy-for-lung-cancer/
https://connect.mayoclinic.org/discussion/immunotherapy-and-chemo/

REPLY
@scared2

I'm really scared of my husband having Immunotherapy. If it can damage other parts of his body. He has kidney disease and currently on oxygen. Immunotherapy could kill him. I think chemo would be better. He has stage 4 lung cancer finished 6 weeks of radiation. Waiting for PT scan to see if it got it all. And to see what his oncologist will suggest if it's negative.
Scared2

Jump to this post

@scared2, Immunotherapy does have the potential for severe side effects, but it also helps many people live longer healthy lives. Your husband's oncologist should know which treatments are a good fit for his situation.
I do know that immunotherapy is sometimes used to treat kidney cancer. But you are correct, there is some risk to the kidneys. I'll be interested to hear the results of his PET and the proposed next steps.

REPLY
@bienestar1

Hello, I have a nodule that was malignant in left lung. But after 2 months of radiation and chemo itis not any longer cancer! But my oncologist is concerned about recurrence and also lymph nodes that lit up on Pet scan. Therefore, she is planning for me to go on immunotherapy. would like know more about it.
I am very weak after the ending the treatments. I did great through the treatments: never had nausea, was able to drive as usual, walks my big dog, eat well.But at the end it all got to me. The radiology oncologist said it is the cumulative affect. He said often it can last a month or two. I dont like to hear that. But I also go my esophagus injured from radiation so that has been difficult. But finally, improving.
Wishing you all the best outcomes for your cancer.

Jump to this post

Hi @biebienestar1, That's great news that your nodule has cleared. Your body has been through a lot, and it needs some time to heal. Give yourself some grace, and your strength will return, hopefully with gusto! Were the lymph nodes in the middle of your chest, or further away from the nodule? How soon are they talking about starting the immunotherapy?

REPLY
@joyelizabeth

My husband has stage 4 lung cancer he has just started immunotherapy is anyone else having this

Jump to this post

@joyelizabeth, I'm sorry that you and your husband are facing this diagnosis. It is difficult for all of us. I hope he responds well. Was he just recently diagnosed?

REPLY
@3122

My husband has been diagnosed with mesothelioma and has just started immunotherapy. Has anyone else received this treatment for same cancer?

Jump to this post

Hi @3122, I hope your husband is tolerating the immunotherapy, and that it will be effective for him with minimal side effects. Here's a link to another discussion specific to mesothelioma and immunotherapy:
https://connect.mayoclinic.org/discussion/any-information-on-biphasic-mesothelioma-response-to-immunotherapy/
Was he diagnosed recently? Is the immunotherapy his first treatment?

REPLY
Please sign in or register to post a reply.