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imetelstat/Rytelo MDS treatment anyone?
My husband has MDS & has been on luspatercept for almost 3 yrs. He is now transfusion dependent. His doc is going to start treatment with a new to the market infusion, Rytelo. FDA approved in June 2024. I’m wondering if any of you or your loved ones have been prescribed this drug & if so, what your experience has been. Thank you!
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Also looking for Rytelo information. It’s so new we may not get much for experience on this.
My husband with MDS 5q deletion for seven years has been treated with Procrit/Retacrit, Vidaza (azacitidine), and Revlimid; all failed after months/years. He is now only partially sustained with Procrit/Retacrit and we’re hoping Rytelo may prove useful.
His hematologist so far says “maybe”. I wish you well in your quest for treatment, and hope you will share what you learn and your experience with Rytelo. Thanks!
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1 ReactionMy husband’s hematologist also said “maybe.” I wish you & your husband all the best & I will share what I learn…his 1st treatment is 1/4/25.
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1 ReactionThanks for responding!
Best wishes for Rytelo to work- blood cancer is a capricious disease, never knowing what will come next. Hoping 2025 is a good year!