← Return to imetelstat/Rytelo MDS treatment anyone?
Discussionimetelstat/Rytelo MDS treatment anyone?
Blood Cancers & Disorders | Last Active: Sep 5 9:09am | Replies (14)Comment receiving replies
Replies to "My husband is still getting the Rytelo infusions. However, he has only had 4 in 8..."
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You're hanging in there.... I didn't know transfusions along with Rytelo would be necessary. Side effects with platelets and white count are very hard to handle - pneumonia is so easy to contract! I understand about "something happens every six weeks" - we live from week to week here, not knowing what the next crisis will be. And hospitalizations have become a fact of life.
I hope you're having some good days too - caregiving is not easy but it is nice to know we can keep our loved ones content, even though it's right at home. Hoping you are able to take care of YOU! And thanks for responding.