1. < MAC & Bronchiectasis

I’m on 2nd day at NJH

Posted by dispatchpat @dispatchpat, 3 days ago

One of my practitioners today said “you sound like another woman I saw today”. I told her a lot of us in our online support groups trade best practices and we laughed.
So, if you want to share a meal this week it would be super interesting to trade experiences in real time. This is my first visit here, and I am really glad to be here. A lot of overwhelmed, but also a lot of confidence in these professionals in this setting!
I know I will not be able to write contemporaneously online in this group about my experience, I will need to digest and reflect with this group later in the process! And you bet I will! Thanks for being here! Best wishes for good luck To all of us! Pat

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

laureltn | @laureltn | 2 days ago

When I went to NJH in October of 2020, during COVID, I spent my evenings in my Airbnb, keeping a daily journal of events that I then shared the highlights in texts to my husband and children. I'm glad I did because without it, I wouldn't have remembered so much of it! Sadly, I've managed to lose the journal -- I forgot to copy it out of my old laptop, I think, and it wasn't in Dropbox as I thought it was.

Hopefully you'll meet up with another person while there!

Laurel

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pacathy | @pacathy | 2 days ago

I’d love to read a summary of your experiences/their recommendations when you’re finished and have time. I hope they have great ideas.

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reneemc | @reneemc | 2 days ago

Looking forward to hearing about your experience!

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jill6063 | @jill6063 | 2 days ago

Hi - I'm on my second day at NJH also! I'd love to get together - let me know the best way to do that. I'm going to let the nurse's station know I'm here - maybe you can do the same and we can hook up that way? I'll also look to private message you with my phone number!

And to my other friends on the forum, I'm taking careful notes and will send a list of takeaways when I'm done!

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2 replies
dispatchpat | @dispatchpat | 1 day ago
In reply to @jill6063 "Hi - I'm on my second day at NJH also! I'd love to get together -..." + (show)
@jill6063

Hi - I'm on my second day at NJH also! I'd love to get together - let me know the best way to do that. I'm going to let the nurse's station know I'm here - maybe you can do the same and we can hook up that way? I'll also look to private message you with my phone number!

And to my other friends on the forum, I'm taking careful notes and will send a list of takeaways when I'm done!

Jump to this post

Excellent! Messaging you. Thanks for responding!I look forward to talking to you.

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bsi15 | @bsi15 | 1 day ago

they should do audio-recordings and provide copies !?

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blm1007blm1007 | @blm1007blm1007 | 1 day ago
In reply to @jill6063 "Hi - I'm on my second day at NJH also! I'd love to get together -..." + (show)
@jill6063

Hi - I'm on my second day at NJH also! I'd love to get together - let me know the best way to do that. I'm going to let the nurse's station know I'm here - maybe you can do the same and we can hook up that way? I'll also look to private message you with my phone number!

And to my other friends on the forum, I'm taking careful notes and will send a list of takeaways when I'm done!

Jump to this post

Hi Jill- Glad to hear you are there. Great that you might be able to connect with another while there. Looking forward to any info you feel good to share.
Barbara

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hbcupcake | @hbcupcake | 1 day ago

I'm going in June and just found this group today! So grateful. I'd love to about your experience there

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jmr69 | @jmr69 | 1 day ago

Good luck to both of you! Waiting to hear what you have to say about your experience and the treatment they decide on.

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