I’m just wondering how old most of you are with PMR

Posted by alexander7757 @alexander7757, 3 days ago

I am 59, but started having PMR symptoms for about 4 years. I still do not have an official diagnosis, but it just started one day when I woke up. It’s so bad for me that I can’t get out of a chair, dress myself . I’m too old to get disability. The symptoms just stop one day and it seems that it’s more of a winter thing for me. I seem like I’m in remission when I started working days, after a decade of working nights. Recently we’ve had a few storms come through and I am in a flare again. I took my first dose of Kevzara today.
Anyone here get PMR at my age. The doctors here think I’m too young for PMR?
I’m so confused and worried about my future. I either have very severe suffering or I have to take 10 mg of Prednisone every twelve hours and nothing different will help me?
I am desperate and looking for answers

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

@dadcue

I was on Prednisone for about the same amount of time. The dead slow method didn't work for me either. I wasn't able to get down to 3 mg without some assistance from a steroid sparing medication. Have you tried any of those? They are used so that you can reduce your Prednisone dose easier.

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Iv'e never heard of a steriod sparing medication. I will look into this, thank you.

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@veronicamac

Iv'e never heard of a steriod sparing medication. I will look into this, thank you.

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For Polymyalgia Rheumatica (PMR) and Giant Cell Arteritis (GCA), steroid-sparing medications are used to reduce the need for long-term, high-dose corticosteroids and their associated side effects. Common options include but not limited to:
methotrexate
leflunomide
azathioprine

These are by prescription only. Most doctors will try them if you are unable to taper off Prednisone within a year or two.

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Thank you so much for this. Up until now my GP has been dealing with my PMR but waiting for a referral to get an appointment with a rheumatologist so will discuss this then.

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