I’m getting my ICD soon, anyone care to share their experience?

Posted by hpboss84 @hpboss84, Jun 17 5:40pm

I am scheduled to get my ICD next week so I am a little nervous, lol.
does anyone have any advice for me?

Interested in more discussions like this? Go to the Hypertrophic Cardiomyopathy (HCM) Support Group.

@jachrist

I just had mine implanted today. As expected, you will be sore. Wear the arm sling to take pressure off from your arm. They did a good job with the surgery.

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are you spending the night at the hospital?

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@walkinggirl

My ICD is literally a lifesaver. After a septal myectomy I had dizziness and later 2 syncopes. I was SO, SO HAPPY when it was installed and these two aftereffects immediately ceased. I slept in a recliner for a short time, was not to not reach above shoulder level for a short while and the incision healed quickly. Can't hold babies on that side and have to remember to avoid turning my upper body tightly to the right. I tell them at airports and am screened differently, I am often told to just walk around other screening situations. It's always scary to deal with medical interventions, evaluating the pros and cons along with asking your cardiologist any questions will help you to make the best decision for yourself.

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thanks for sharing your experience. i’m sort of looking forward to it. but it will cause me to give up my job of driving commercially. oh well, things change don’t they

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My ICD is literally a lifesaver. After a septal myectomy I had dizziness and later 2 syncopes. I was SO, SO HAPPY when it was installed and these two aftereffects immediately ceased. I slept in a recliner for a short time, was not to not reach above shoulder level for a short while and the incision healed quickly. Can't hold babies on that side and have to remember to avoid turning my upper body tightly to the right. I tell them at airports and am screened differently, I am often told to just walk around other screening situations. It's always scary to deal with medical interventions, evaluating the pros and cons along with asking your cardiologist any questions will help you to make the best decision for yourself.

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Hello @hpboss84 and welcome to Mayo Connect.
I would be more than a little nervous! I don't blame you at all. Have you had a chance to look around here on Mayo Connect?
I'd like to introduce you to @irishpeaks who has a lot of experience with an ICD. If you care to, click on his name and it will take you to his posts. He's got so much to add to this discussion.
I don't have an ICD, but my advice would be no matter what, do what you are doing...look for information and educate yourself as much as you can about your condition and what your options are.
Next week is pretty quick! Is your cardiologist familiar with HCM and how to treat it?

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I just had mine implanted today. As expected, you will be sore. Wear the arm sling to take pressure off from your arm. They did a good job with the surgery.

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