I'm desperate. Where can you recommend help for LC patient?
Can anyone recommend a clinic or doctor to help with LC? Mayo is out and the U of M only accepts referrals from in house which leave me out. I would prefer Hennepin County but will go wherever. Thank you
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@pianist3 I'm late seeing this comment, and just want to say how fortunate you are that you are finding so many things to be helpful...and doable. I think many of us would love to be able to do these things, but are unable. I can barely walk to the bedroom upstairs without experiencing PEM, and as for retiring ~ I am old (80) so already retired, but would have been unable to retire before 70; I think many people with LC would like to retire, but cannot, and find it impossible to qualify for disability benefits. I so wish I could continue with my volunteer work, plan a trip, help others, etc. but it is simply not possible. In fact were it not for a very compassionate and able husband I'd be unable to even eat those good meals you mention. I think I just felt a need to point out how lucky you are, and that most of the other people in this group are struggling. I wish it were just 'mind over matter' and I absolutely agree that that helps, but it's not the whole story. I (and many others) had long been eating organic, exercising, doing yoga; I cannot even do gentle yoga now. So many things.... I think every one of us is doing the best we can; you seem to have hit the jackpot in terms of successfully managing this condition, and are very lucky. Keep on keeping on! Go well, dear pianist....
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1 ReactionMe too. @suefishr
Me too. I’m suefish NOT suefishrob