Just diagnosed with IgA nephropathy: What do I need to know?
Need quick education on IGA Nethropothy. Treatment options, what to watch for, who to add to care team.
IGA Vasculitis (diagnosed Sept. 2021) has advanced to diagnosis of IGA Nethropothy as of 9/6/22.
Nephrologist is monitoring proteinuria, microscopic blood in urine, high leukocytes, high immature platelets being released into blood. Creatinine is low, but okay, but shows kidneys are not working as they should.
Building care team: Have Nephrologist (kidney monitoring, prednisone dosing, antibiotic to prevent prednisone pneumonia); dermatologist (lesions, dapson); PCP (omaprazal, high dose calcium, B3).
Adding Rheunatologist to care team on Friday.
Sick and bed bound. Have struggled with extreme malaise, feel unwell, loss of appetite, lower back pain. Please share tips, suggestions, resources on IGA Nethropothy.