Anyone have any insight / education/ experience with this disease. I am a 34 yr old female, I was diagnosed in 2012, After several misdiagnosed urinary track infections. I started showing large amount of blood in my urine along with other red flags through my blood and urine. A kidney biopsy concluded that I had IGA Nephropathy. I currently have my urine and blood tested once a year by my primary care physician. I have been referred several time to Nephrology, but have failed to be excepted in only by resident or Pa., which I decline. With this type of disease I feel that as thing progress I would need to have a good relationship with a highly qualified Doctor. So, I will keep searching . At this point my test levels have remained good and I have shown no alarming symptoms.