What's it like to get a biopsy for IgA nephropathy?

Posted by joejokief73 @joejokief73, Sun, Jun 23 7:10pm

I have stage 3 kidney disease and have been in stage 2 for 10 years. I’m getting a biopsy soon. I want to know your experiences with them.

Welcome to Connect, @joejokief73
You'll notice that I moved your message to the Kidney & Bladder group (https://connect.mayoclinic.org/group/kidney-conditions/) where you'll meet other members with stage 3 kidney disease and IgA nephropathy, like @eileen14 @butterfly225 @AlwaysHopeful and @kidney09. I'm also tagging other members @cehunt57 @rosemarya @kamama94 and @trishannawho, who have or had CKD and may have had a kidney biopsy and can share what it is like.

Joe, how are you feeling these days? What symptoms concern you the most?

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@colleenyoung

Welcome to Connect, @joejokief73
You'll notice that I moved your message to the Kidney & Bladder group (https://connect.mayoclinic.org/group/kidney-conditions/) where you'll meet other members with stage 3 kidney disease and IgA nephropathy, like @eileen14 @butterfly225 @AlwaysHopeful and @kidney09. I'm also tagging other members @cehunt57 @rosemarya @kamama94 and @trishannawho, who have or had CKD and may have had a kidney biopsy and can share what it is like.

Joe, how are you feeling these days? What symptoms concern you the most?

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My biggest symptom seems to be fatigue and I have some swelling in legs and feet at times. I've been very stable and in stage 2 until recent labs have me in stage 3a I'm scared and I worry about it all the time.

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@colleenyoung

Welcome to Connect, @joejokief73
You'll notice that I moved your message to the Kidney & Bladder group (https://connect.mayoclinic.org/group/kidney-conditions/) where you'll meet other members with stage 3 kidney disease and IgA nephropathy, like @eileen14 @butterfly225 @AlwaysHopeful and @kidney09. I'm also tagging other members @cehunt57 @rosemarya @kamama94 and @trishannawho, who have or had CKD and may have had a kidney biopsy and can share what it is like.

Joe, how are you feeling these days? What symptoms concern you the most?

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@rosemarya, have not had a kidney biopsy, just a skin biopsy and (of all things) a tongue biopsy so can't speak to this. What I had done was painless except for the needle stick to the tongue and it stung only for a second. Sorry I can't be of more help.

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Ouch

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I have had many kidney biopsies of my transplant and the process can be stressful but it is very tolerable, not painful. I've had to change into a gown, lay in a hospital bed while vitals are monitored and health questions updated, when it's my turn I've been brought into a surgery suite and numbed with lidocaine while a needle is inserted with the guidance of ultrasound and a few peices (the size of a 1 inch hairs) are collected, next brought to recovery to lay flat for an hour, sit for 30min, eat, walk and go home to rest for a day.

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I can tell you what I was told about a kidney biopsy. I wasn't able to observe it, because I was laying on my stomach when it was done. They used a local anaesthesia to deaden the back. Then they take a long needle to go through the back into the kidney. They used an ultrasound so the doctor could see where the needle was. There were some clicking sounds as they took the samples. For me they took samples from both kidneys. I felt absolutely no pain. Afterward they watch you for a while to make sure there is no bleeding. Mine was not done for IgA nephropathy, just to check kidney function.

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Thank you

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Kidney biopsies are for the most part routine. I've never had one, because when I was brought to the ct scanner (used to show the radiologist your kidney), the radiologist gave me her opinion of the risks involved as opposed to the benefits. My risks negated the biopsy, so I declined to have one and it turned out to be the right choice. Ultimately, my kidney was removed along with a cancerous tumor. Please note that great care is taken when they do these tests, and I would not hesitate to have a biopsy on my remaining kidney. You have a right to know exactly what the procedure is and whether or not any risks are involved. Questions should be directed to your nephrologist and your radiologist. You should be concerned, of course, but not worried or scared. I would insist on another appointment where your worries can be addressed. I also "fired" my urologist for his failure to handle my justifiable concerns. Good luck and report back to us.

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@joejokief73 I am not aware that there are different techniques for kidney biopsy. I had one in early 2015, and it was very similar to @marvinjsturing and his biopsy. I was given a"tranquilizer" and remained awake and aware during the entire procedure. My procedure nurse was an ex-Army medic, who talked me through the whole procedure. My nephrologist had done the same, and used a surgeon who he trusted for the procedure. As has been mentioned, speak to your nephrologist for any specific concerns. Come back and tell us how you do. We care.
Ginger

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I thank you for your info on this. I think mostly I am alright with doing this. I mean I know what I have as well as my neph. This is to just confirm it. I am a natural born worrier about everything. I think when I hear that I need this I immediately freak out if you will about it.

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@joejokief73

I thank you for your info on this. I think mostly I am alright with doing this. I mean I know what I have as well as my neph. This is to just confirm it. I am a natural born worrier about everything. I think when I hear that I need this I immediately freak out if you will about it.

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@joejokief73 I felt the same way when I was told what was going to happen. It wasn't nearly as bad as I had imagined. The nurses that assist keep talking to you the whole time – probably to keep your mind off of what is going on.

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Now im just wanting to get it over with

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@joejokief73

Now im just wanting to get it over with

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@joejokief73, I am happy that you have already gained support and confidence by hearing the experiences of other members who have gone thru it.
I never had a biopsy of my native kidneys, but I have had several on my transplanted kidney which is in my lower left abdomen. My experience is very similar to those already posted. The only pain for me was a 'bee sting' prick with the initial lidocaine was administered and it was only a split second prick.
For me the most discomforting part was just the thought of being in a hospital like environment for this outpatient procedure.

My husband accompanied me, and he was able to be with me afterwards, and we chatted with the nurses who monitored my vital signs, brought me a drink and snack, helped me to bathroom when I got up, and walked with me before I was discharged. I did have some discomfort afterwards, and I was allowed to take some tylenol for it.
Take comfort in knowing that it is a 'routine' procedure. The doctors do it often enough that they have developed a remarkable skill.

Has the biopsy been scheduled?

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@colleenyoung

Welcome to Connect, @joejokief73
You'll notice that I moved your message to the Kidney & Bladder group (https://connect.mayoclinic.org/group/kidney-conditions/) where you'll meet other members with stage 3 kidney disease and IgA nephropathy, like @eileen14 @butterfly225 @AlwaysHopeful and @kidney09. I'm also tagging other members @cehunt57 @rosemarya @kamama94 and @trishannawho, who have or had CKD and may have had a kidney biopsy and can share what it is like.

Joe, how are you feeling these days? What symptoms concern you the most?

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I just found out that I have been in stage three kidney for over five years now; and if I did not discover this myself the endochronologist and the others would not have told me this. I have also been going to an oncologist for eight years and he also did not notify me of this. They all took the same blood tests. Perhaps I should not be so upset? Now, after I have changd the doctors. the new endochonologist is addressing this issue starting with a decrease if the metformin medication and is sending me to a nephralogist. I have stated before that the doctors here in Ocala are questionable. (I am trying to be kind). ha, ha, ha, ha.

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