If you suspect Lupus or MCTD, be sure

Posted by mattymatilda @mattymatilda, Jul 2 4:30pm

And see an ear nose and throat doctor. My ENT is the one that discovered my lupus. I was having trouble breathing while laying down. It felt like my nasal cavities were blocked. After doing an MRI and having an examination, the ENT said I need to see a rheumatologist. The Lupus had already attacked my nasal cavity eustachian tubes and my hearing. I had no idea I had hearing loss and both of my ears. I’m the only one so far in my family that has hearing loss and I have to wear hearing aids. So if you’re having any ear nasal issues, please go see an ENT they may be able to spot some thing that your PCP missed. My ENT also didn’t MRI on my head. I just wanted to share that with anyone who thinks or feels like they may have, lupus or similar

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U know my dr said STRESS is the worst thing for me. To stay stress free. How do u do that? It's everyday life. But I'm trying. Thank u for ur support!

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@lowrymal50

How do I get in. Now I have Acute bacterial bronchitis. I can't breath, coughing, wheezing! Now on inhalers, cough meds, medrol pack and amoxicillin! I've lost 2 years of my life to.long c9vid. I was finally feeling better and I got COVID AGAIN. Now, it is all starting over again. I can't live like this. I want to see my grandbabies. I'm only 53. No one gives a crap!!! I've been crying all day!

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@lowrymal50 If you would like to go to Mayo Clinic, you may need your doctor’s help. You don’t need their approval, just help to send your medical records to Mayo and to work within Mayo’s guidelines once you get home. There are 3 Mayo Clinic’s (Rochester,MN; Phoenix, AZ; and JacksonvilleMayo, Jacksonville, FL). The web link is http://mayocl.in/1mtmR63

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