Immune Thrombocytopenia Purpura (ITP): What helps?

Posted by naiviv @naiviv, Sep 2, 2022

Has anyone been diagnosed with ITP? Does anyone take supplements for ITP? Food to eat to increase platelets?

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Profile picture for cathy07 @cathy07

Hi. Did you get treated for the hpylori? If so what was the result? Thanks.

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Yes and the platelets rose fast 4-5 days after starting treatment for it.

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Profile picture for cathy07 @cathy07

Thank you for moving me.
In my research at Mayoclinic.com, I found information about Helicobacter pylori.
Has anyone here had a positive test for this bacteria.

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Yes, 4-5 days after treatment for Hpylori my husband’s platelets rose and very quickly.

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Profile picture for jimmyb63 @jimmyb63

Thank you so much for your response and information. It helps to hear from someone who has been on this same journey. They did mention a possible splenectomy if these treatments do not work. However I will need a heart valve replaced in the future, so I’m hoping I can keep the spleen at least until after that. They also diagnosed me we Hpylori which I’ve read can cause your platelets not to increase until it’s eradicated.

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Hi. Did you get treated for the hpylori? If so what was the result? Thanks.

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Profile picture for cathy07 @cathy07

I was diagnosed in mid 2020.
Not sure if I can edit the last reply.

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Cathy, there are a couple of ways to edit our replies. I often spot typos or things I want to change.
There is a 30 minute window where you can edit yourself. At the bottom right side of your comment there are 3 dots …

Click there and a menu drops down where you can Copy, link, Report Comment and for 30 minutes you’ll see Edit! Click edit and go ahead and make the correction.

After 30 minutes click the same 3 dots … and click on Report. That will take you to a moderator who will be happy to change whatever you need. They can delete comments, correct spelling or edit whatever you need. All you have to do is ask. ☺️

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Profile picture for cathy07 @cathy07

I was diagnosed with ITP about mid 2021. I have taken several different treatments without much luck.
I have a great doctor and a supportive care team.
Just doing some research on my next move.
Thanks for helping me move around in this group.
It will be nice to not feel so alone.
Happy New Year

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I was diagnosed in mid 2020.
Not sure if I can edit the last reply.

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Profile picture for Colleen Young, Connect Director @colleenyoung

Welcome, @cathy07. Have you only recently been diagnosed with ITP? How are you doing?

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I was diagnosed with ITP about mid 2021. I have taken several different treatments without much luck.
I have a great doctor and a supportive care team.
Just doing some research on my next move.
Thanks for helping me move around in this group.
It will be nice to not feel so alone.
Happy New Year

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Profile picture for melody12 @melody12

I was diagnosed in 1991 and put on steroids. WBC count continued to drop and in 1992 I had a splenectomy. My WBC’s are now a little elevated (6-700,…), which is now my new “norm” and have no issues to speak of.

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Thank you for moving me.
In my research at Mayoclinic.com, I found information about Helicobacter pylori.
Has anyone here had a positive test for this bacteria.

REPLY
Profile picture for Colleen Young, Connect Director @colleenyoung

Welcome, @cathy07. Have you only recently been diagnosed with ITP? How are you doing?

Jump to this post

I was diagnosed in 1991 and put on steroids. WBC count continued to drop and in 1992 I had a splenectomy. My WBC’s are now a little elevated (6-700,…), which is now my new “norm” and have no issues to speak of.

REPLY
Profile picture for cathy07 @cathy07

Does anyone else have ITP?

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Welcome, @cathy07. Have you only recently been diagnosed with ITP? How are you doing?

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Does anyone else have ITP?

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