Idiopathic Polyneuropathy: Do you have fatigue?

@db72
Do you know the cause of your neuropathy? Have you been tested for small fiber neuropathy with a skin punch biopsy? If not, ask your neurologist when you see them next.

Did you have extensive neuropathy bloodwork to see if anything is abnormal like vitamin deficiency or toxicity? Have you had your thyroid bloodwork panel done and had your iron levels checked? This can cause fatigue.

Do you get physical therapy to help you with circulation or do some seated stretches and exercises to improve circulation? You could even do some while lying in bed.

I too have fatigue with my SFPN. My feet swell and feel like I’m walking on marbles. Legs feel heavy and don’t pick up my feet as I should due to muscle weakness, I believe. As a result, I have tripped and fallen a few times which has been scary. I also have shortness of breath which I attribute to CFS due to having Covid for the first time in Dec. 2023. I’m 81 and will start doing feet/leg exercises faithfully to hopefully prevent falls.

I am diagnosed I am diagnosed with polyneuropathy also And I get very very tired but I like you have many other ailments including cancer So it's very hard to tell I do wear NERUO socks which really help my ' and I put on lidocaine patches all the time and that also helps the So it's very hard to tell I do wear NERUO socks which really help my ' and I put on lidocaine patches all the time and that also helps the So it's very hard to tell I do wear NERUO socks which really help my ' and I put on lidocaine patches all the time and that also helps the discomfort Wish you luck keep keep in touch

Mine is classified as idiopathic because they did every test in the book including nerve conduction studies, autoimmune studies. Monoclonal antibodies, brain scans, vitamin/iron, the whole nine yards. I’ve had Hashimoto’s for decades but it’s well managed. I have severe large fiber axonal damage. I believe my nerve damage began 40 years ago when I was struck a severe case of Epstein Bar Virus. I never recovered and it turned into ME/CFS (Chronic Fatigue Syndrome). I’ve been disabled my whole adult life. The nerve damage began literally overnight when I first got sick. But the numbness and progression started about 20 yrs ago. I’m not well enough to go out for physical therapy but there are balance exercises online I do when I’m up to it.

@db72
I had mono as a teen and wonder if EBV is behind my idiopathic small fiber neuropathy.
1. https://www.ajnr.org/content/early/2023/07/27/ajnr.A7945
2. https://www.acibademhealthpoint.com/epstein-barr-virus-and-nerve-damage-risks/

I am diagnosed I am diagnosed with polyneuropathy also And I get very very tired but I like you have many other ailments including cancer So it's very hard to tell I do wear NERUO socks which really help my ' and I put on lidocaine patches all the time and that also helps the So it's very hard to tell I do wear NERUO socks which really help my ' and I put on lidocaine patches all the time and that also helps the So it's very hard to tell I do wear NERUO socks which really help my ' and I put on lidocaine patches all the time and that also helps the discomfort Wish you luck keep keep in touch

I may be occasionally more tired than I was before my diagnosis of IPN, but my biggest complaint is my lack of physical stamina. I'd always worked a very physical job, along with working around our home and my parent's home as well, so I was used to working 12-14 hour days, including some Saturdays. I did this for decades without thinking anything of it, but now I can't help my wife out in the yard for more than 5-10 minutes without having to sit and rest. It's 'frickn pathetic.

To help fight my fatigue my doctor said to drink an enormous amount of water like three liters a day and avoid other drinks like coffee and soda. It works!