idiopathic peripheral neuropathy - numbness in feet but no pain

Posted by tedkaplysh @tedkaplysh, Feb 20 6:58pm

Anyone have a similar condition and found remedies for the numbness?

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@cheyne

I was told by an internist and a neurologist that the cause of my peripheral neuropathy was idiopathic. The internist speculated as to the cause, the neurologist rejected the speculation. The cause does not seem to matter. Neither one said that the nerves lost could be regenerated. The internist prescribed B-6, Folate and B-12 and later admitted that was to possibly eliminate further deterioration of the condition. The neurologist offered nothing and then retired. So, I am left to deal with the repercussions e.g. I have found a pair of shoes that give me significant stability and I wear them daily. I also exercise on an eliptical machine, a recumbent bike and walk the neighborhood. Messaging my feet and legs with a Hyperice feels good but does not remove the numbness. Exercises for balance also helps to hopefully prevent falling.

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@tedkaplysh
Hi…I also have neuropathy…and pre diabetic…did your Drs ever put you on metformin or other drug for the pre diabetes? Mine didn’t.
Steve

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@tedkaplysh
Hi…I also have neuropathy…and pre diabetic…did your Drs ever put you on metformin or other drug for the pre diabetes? Mine didn’t.
Steve

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@stallen

I am not rare-diabetic as of my last physical.

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@stallen

I am not rare-diabetic as of my last physical.

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@tedkaplysh

I believe that whether you are pre-diabetic or non-diabetic or diabetic is determined by what your Hb A1c number is. Not all places use the same values to determine status. Normal at Mayo is 4-5.6%. Also blood glucose. Mayo is 70-140; here it's 70-100.

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I started developing symptoms that felt like numbness but later realized that it feels more like having a tight band across my left foot. It started with the tightness around the bottom of the foot. It eventually moved to more on top of the foot to the ankle and now going up the lower calf. Eventually i developed drop foot when i walk. My gait is not normal, looks like i’m dragging my foot although i can still lift it. I’m trying to make an appointment with a neuro surgeon to evaluate my spinal MRI. It seems that i have a cyst that could possibly be pressing on the nerve. Has anyone else experienced something similar?

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Profile picture for panda2ac @panda2ac

I started developing symptoms that felt like numbness but later realized that it feels more like having a tight band across my left foot. It started with the tightness around the bottom of the foot. It eventually moved to more on top of the foot to the ankle and now going up the lower calf. Eventually i developed drop foot when i walk. My gait is not normal, looks like i’m dragging my foot although i can still lift it. I’m trying to make an appointment with a neuro surgeon to evaluate my spinal MRI. It seems that i have a cyst that could possibly be pressing on the nerve. Has anyone else experienced something similar?

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Welcome @panda2ac, I don't have any experience to share with you but I did a quick search of Connect using "spinal cyst and drop foot" which found a few members including your post with similar symptoms. Here's the link with the list of comments - https://connect.mayoclinic.org/search/comments/.

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@panda2ac: Boy I’m surprised that your symptoms are similar to what I have had on my right foot. It is like a tight band around my upper foot towards my ankle, that restricts my foot from flexing normally. My feet are usually cold, but when this happens it feels cold & numb. Even if I rub the foot, it does not affect the feeling of a restrictive band (with nothing visable). I guess I just thought it was another weird feeling from Neuropathy. My gait is normal.
I am very interested in what information you get from your doc.
dbamos1945

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What they are thinking is that I have a Tavlov cyst compressing on the nerve that runs down from behind the thigh to the outside of the ankle and to the top of the foot. They day that usually the cysts are benign and they leave them alone unless it causes problems. I’m scheduled to see a neurosurgeon to see if this is the case and whether they can drain it and fill it with fibrin to prevent reoccurrence.

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@panda2ac: Prior post referenced foot/ankle restrictive feeling that restricted full movement. This is weird, but my MRIs also show Tarlov cyst on lower spine - similar to your issue.
I want to follow and learn from your experiences. So please share your docs evaluation and if surgery is advised. Also wonder what will happen if you do not choose surgery?
Thank you! dbamos1945

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Have you discussed with a neurologist about your tavlov cyst? Did they give you any suggestions or recommendations?

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How many people have had a bunionectomy proceedure done and then developed idopathic neuropathy soon after?

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