1. < Transplants

I would like to connect with others who have had a kidney transplant

Posted by betzymontero8 @betzymontero8, Apr 12 8:55am

The doctor told my dad , the old kidney still working a little a is the responsable .
He has 5 weeks since the transplant

Interested in more discussions like this? Go to the Transplants Support Group.

kirbieanthony1961 | @kirbieanthony1961 | Apr 26 10:01am
In reply to @gratefulbob "When I had a mild kidney rejection episode they boosted my anti-rejection meds up a huge..." + (show)
@gratefulbob

When I had a mild kidney rejection episode they boosted my anti-rejection meds up a huge amount for a few weeks and this allowed BK to replicate. It reached over 100,000 copies at its peak. After reducing the anti-rejection meds to my normal levels the BK became no longer detectable and it has remained so for the last 8 months.

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Thank you so much . So I guess that is what they are doing with me. So have your numbers improved.

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gratefulbob | @gratefulbob | Apr 25 6:36pm
In reply to @kirbieanthony1961 "Hi has anyone survived a bk virus while having a kidney transplant. My creatinine I high..." + (show)
@kirbieanthony1961

Hi has anyone survived a bk virus while having a kidney transplant. My creatinine I high and gfr is low. It has finally come down to under 600 and off two immune suppressants until it goes away.Been having a hard time since months post kidney transplant. Any advice would be appreciated.

Jump to this post

When I had a mild kidney rejection episode they boosted my anti-rejection meds up a huge amount for a few weeks and this allowed BK to replicate. It reached over 100,000 copies at its peak. After reducing the anti-rejection meds to my normal levels the BK became no longer detectable and it has remained so for the last 8 months.

REPLY
1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Apr 25 3:37pm
In reply to @kirbieanthony1961 "Hi has anyone survived a bk virus while having a kidney transplant. My creatinine I high..." + (show)
@kirbieanthony1961

Hi has anyone survived a bk virus while having a kidney transplant. My creatinine I high and gfr is low. It has finally come down to under 600 and off two immune suppressants until it goes away.Been having a hard time since months post kidney transplant. Any advice would be appreciated.

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Welcome, @kirbieanthony1961.
I recommend posting your question about BK virus after kidney transplant in one of these 2 related discussions:
- Transplant: BK Virus
https://connect.mayoclinic.org/discussion/transplant-bk-virus/

- BK Virus New Antibody
https://connect.mayoclinic.org/discussion/bk-virus-new-antibody/

I think you'll find the posts helpful and you'll be able to connect easily with others with a similar experience.

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kirbieanthony1961 | @kirbieanthony1961 | Apr 25 3:19pm
In reply to @betzymontero8 "Hi @rosemarya yes is taking his medicine! And the vomiting and diarrhea just for one night..." + (show)
@betzymontero8

Hi @rosemarya yes is taking his medicine! And the vomiting and diarrhea just for one night he is normal this morning we are thinking was something in food . Thanks God . This process is really scared for me . Becouse every symptom I think is the kidney failure back . No body understand my afraid .

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Hi has anyone survived a bk virus while having a kidney transplant. My creatinine I high and gfr is low. It has finally come down to under 600 and off two immune suppressants until it goes away.Been having a hard time since months post kidney transplant. Any advice would be appreciated.

REPLY
2 replies
betzymontero8 | @betzymontero8 | Apr 23 10:56pm

Hi @rosemarya yes is taking his medicine! And the vomiting and diarrhea just for one night he is normal this morning we are thinking was something in food . Thanks God . This process is really scared for me . Becouse every symptom I think is the kidney failure back . No body understand my afraid .

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1 reply
Mentor
Rosemary, Volunteer Mentor | @rosemarya | Apr 23 5:50pm
In reply to @betzymontero8 "He is resting now . But he told me he no wants the immunopresoores for today..." + (show)
@betzymontero8

He is resting now . But he told me he no wants the immunopresoores for today ! In really worry . Is hard contact doctors here

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Thinking of you. Hope your dad is feeling better. He needs to be taking his transplant meds. Is he taking them?

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betzymontero8 | @betzymontero8 | Apr 22 2:33pm
In reply to @rosemarya "@betzymontero8, How is your dad? ❤️" + (show)
@rosemarya

@betzymontero8, How is your dad? ❤️

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He is resting now . But he told me he no wants the immunopresoores for today ! In really worry . Is hard contact doctors here

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1 reply
betzymontero8 | @betzymontero8 | Apr 22 2:32pm

I’m sorry . How old are you ? How near are you of the doctors .
Becosue in my country is really hard contact them ! @pjpanning

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pjpanning | @pjpanning | Apr 22 2:26pm
In reply to @betzymontero8 "What effects do you have for the immunosuppressants? diarrhea, vomiting?" + (show)
@betzymontero8

What effects do you have for the immunosuppressants? diarrhea, vomiting?

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I have tremors, or a shaky body, also my hair is really thinning out. Also headaches, if my Tacro gets too high.

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Mentor
Rosemary, Volunteer Mentor | @rosemarya | Apr 22 1:52pm
In reply to @rosemarya "Call transplant team now. They need to know this." + (show)
@rosemarya

Call transplant team now. They need to know this.

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@betzymontero8, How is your dad? ❤️

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