Mayo Clinic Connect
I was recently diagnosed with Bronchiectasis. No symptoms yet just starting different tests- another CAT scan, pulminary function test, and possible bronchoscopy. Any advice/suggestions would be greaty appreciated. Thank you!
Liked by Dee, adair, crepass
What is the side effect of Arikayce? I can't take anymore diahrrea I'm 75 yrs old.
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@nina1944 Hi My side effects from Arikayce were minimal also, just a hoarse voice which improved over time and with strepfen, and a bit of a cough when I stat inhaling, just have a glass of water near by. It is great stuff!
Liked by irene5 Irene Estes, yaggi01
How long did you take it
@nina1994 I took it for a year.
All the best Heather
Gotta laugh. Taking a hint from Daniel Pecaut I recently tried to meditate while the vest was giving me a thumping. Decided to concentrate on Pranayama breathing but my venture promptly tanked in the face of a swarm of thoughts about how to present my experience on this discussion board. As a meditator I’m not yet ready for prime time. 😂
Thumperguy, You are a funny guy!
@windwalker Terri, I found a book on Amazon called "Beating Bronchiectasis", by Daniel Pecaut. He went all out changing diet, exercising and one interesting treatment..nebulizing L-Glutathione which is an anti-oxidant. He was treated at Mayo in Minnesota and his doctors knew he was nebulizing and didn't tell him not to, so I have been doing also. I admit I probably would be better if I was nebulizing twice a day but truth is I hate if….and put it off, and sometimes it's days before I do it. It just hurts, and I feel like I'm going to pass out no matter what is in the nebulizer!!! But that is a good treatment for people to try for sure!! And get the book on Amazon..it's cheap!!
Currently with my infection I have been without antibiotics until 2 days ago, so I have been nebulizing Colloidal Silver. I was careful to get a brand recommended by a local Herbalist. I think it has been helping, but I need to use it more. I have read that people use the silver along with their regular medical treatment and they don't have adverse reaction. But research….MAC and Colloidal Silver. You won't turn blue!!! Silver Shield by Nature's Sunshine (broad spectrum immune support).
@gaylewroc, Hi Gayle! I hope you are doing well and staying safe from covid. I was just reading over this older post of yours, and was wondering how you are currently doing? Did the more natural route of treatment work for you?
Febrile Flareups and the spacing between them constitute my criterion measure of treatment results. I’m silly with glee as I near 9 months w/o swallowing an antibiotic. Don
Liked by Terri Martin, Volunteer Mentor
@thumperguy Wow Don – that's great news. I was just telling my friend on the phone this morning that this week marks 7 months with no antibiotics and no flare up of MAC – just saline nebs and lots of exercise.
I'm wondering if all the mask-wearing and social distancing are helping all of us avoid exposure to common respiratory bugs that lead to exacerbations – maybe a sliver of a silver lining to this awful pandemic?
Stay well and keep thumping.
Liked by Terri Martin, Volunteer Mentor, migizii
And hopefully you'll not ever have to again ! Best wishes !!
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