Interstitial Cystitis - I would like to connect with others

Posted by 8dzaweek @8dzaweek, Mar 22, 2016

I.ve been told that Interstitial Cystitis is an autoimmune disease. Are there any discussion groups on this very painful condition??

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@bobsgift

I deal with the curse. My urologist said it's due to my transplanted kidney migrating too close to my bladder which causes the inside walls of the bladder to touch causing the irritation. Before I was diagnosed several years ago I assumed I was suffering from chronic UTIs and took a regular prophylactic low dose anti biotic. I get much better results following the IC diet and taking D- mannose. I've not taken anything for pain in the past. I usually just cancel my day and stay home but not everyone can do that. As an interesting side note…the same foods that exacerbate IC symptoms flare up my rosecea!!

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@bobsgift. Sounds like you sorta have things under control except you have to cancel things and stay home. 😑 Can you explain a little more about the IC diet?

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@hellobeth

I am trying to find a urologist in Los Angeles that treats IC. Done many treatments and still have terrible pain.

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@hellobeth have you found a urologist in Los Angeles that treats IC yet?

Here is a site that may help you locate an IC specialist if you have not already found one.
https://www.ic-network.com/find-a-provider/

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