I need help! Just at a loss and confused. I'm a mystery!

Hello 19 M 254 LBS 6'1

I am going to add a list of symptoms that I plugged into chat gpt (its an easy way for me to keep up with them). Please see below. I have no idea what else to do. My doctor it just seems like he won't listen.

Current Symptom Summary

- Progressive difficulty with walking and balance over several years.
- Legs often feel weak, heavy, tight, or like "jello."
- Trouble climbing stairs; legs fatigue easily.
- Difficulty standing up from the floor without using hands.
- Trouble with heel-to-toe walking; balance problems while walking and in the shower.
- Severe heat intolerance. Hot weather causes worsening dizziness, weakness, fatigue, blurry/jumping vision, and unsteady walking.
- Dizziness for approximately 8 years, sometimes with palpitations, shortness of breath, lightheadedness, and fatigue.
- Vision disturbances including occasional double vision and a sensation that vision is bouncing or jumping, especially in heat.
- Lower back tightness and pain, especially when standing still for prolonged periods.
- Muscle weakness and reduced endurance in arms and legs; difficulty lifting heavy objects such as a case of water.
- Muscle soreness, particularly in the upper arms and shoulders, worse on the right side.
- Intermittent numbness, tingling, and pins-and-needles sensations in the legs and feet.
- Brief electric shock/buzzing sensations through the body.
- Occasional facial symptoms affecting the right side of the face.
- Daily brief neck jerks or sudden involuntary movements.
- Episodes of body numbness or sudden "jolting awake" sensations when trying to fall asleep.
- Finger, hand, and forearm pain at times.
- Excessive sweating, even in air-conditioned environments.
- Symptoms appear to be gradually worsening rather than improving.

Relevant History

- Osteopenia/osteoporosis since childhood.
- Low vitamin D history.
- History of low testosterone levels.
- Cushing's testing reportedly normal.
- Muscular dystrophy testing reportedly negative during childhood.

Thank you all for checking this out! Send some tips, ideas, etc. My way! Thanks!!