Looking for others with Pituitary Adenoma

Posted by dmedina71 @dmedina71, May 3, 2016

I like to now if their is anyone who has been diagnosed with Pituitary Adenoma

Liked by sandysdoves

@lisalucier

@ladydove417 – that would definitely be hard with your family just hearing that you don't have a tumor and not quite understanding your situation. With all the pieces to pull together of this puzzle, as your endocrinologist said, it's understandable you'd feel lost.

@dmedina71 makes an important point that seeking a second opinion if you are feeling uncertain could be useful.

I'd like you to meet @gemttaz @remsen @sandysdoves and @hopeful33250, who may have some input as you are going through this process and wondering about the possible 4mm microadenoma.

When will you be doing the hormone check, saliva test and sleep test?

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@lisalucier I still have to schedule my sleep study but I did my siliva test last night. Thank you for responding.

Liked by Lisa Lucier

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Ok just to give everyone and update. I recieved my lab results from my initial visit with my Encronologist and Neurologist. Ironically, my prolactin levels were normal (24) and all the other lab results were also normal however I still have breast discharge. My Encronologist said it may be idiopathic discharge. My prolactin levels have been checked monthly since August and each month they have been mildly elevated until this month. My Encronologist also stated I may have a tiny tumor but the MRI was unconvincing and my level would be in the 200's if my elevated prolactin levels were related to a pituitary adenoma that produced excessive prolactin. My Encronologist is doing a siliva test for possible Cushing's disease but highly doubts if that is an issue. I completed siliva test last night, so I'll wait to see what happens. I've been told not worry or I'm not sure what you have but if you do have a pituitary tumor, it's tiny and nothing to worry about. I just believe every situation is unique and shouldn't be dismissed because they don't fix the typical textbook explanations. Just my thoughts from a confused patient.

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@ladydove417

Ok just to give everyone and update. I recieved my lab results from my initial visit with my Encronologist and Neurologist. Ironically, my prolactin levels were normal (24) and all the other lab results were also normal however I still have breast discharge. My Encronologist said it may be idiopathic discharge. My prolactin levels have been checked monthly since August and each month they have been mildly elevated until this month. My Encronologist also stated I may have a tiny tumor but the MRI was unconvincing and my level would be in the 200's if my elevated prolactin levels were related to a pituitary adenoma that produced excessive prolactin. My Encronologist is doing a siliva test for possible Cushing's disease but highly doubts if that is an issue. I completed siliva test last night, so I'll wait to see what happens. I've been told not worry or I'm not sure what you have but if you do have a pituitary tumor, it's tiny and nothing to worry about. I just believe every situation is unique and shouldn't be dismissed because they don't fix the typical textbook explanations. Just my thoughts from a confused patient.

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Good to "hear" your update, @ladydove417. That's rough that you are feeling confused in the midst of the testing process. Very understandable.

I'd also like to introduce you to @parrotqueen @astaingegerdm @koryn @elmay @downeylynn, who also have talked about pituitary tumors.

When will you get the results and interpretation of the saliva test you were given, @ladydove417? Do you believe your doctor was saying that the breast discharge was likely unrelated?

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Hey Ladydove. If you find you do have a pituitary adenoma, I'll be happy to talk with you about it. I have so many hormonal deficiencies! I have to take Armour thyroid, cortisol for adrenals, and Human Growth Hormone. I feel SO much better now. Try your best not to stress because that will only make hormonal imbalances worse and lead to more illness. Breathe – deep breaths from the lower belly – in through your nose, out through your mouth. That is what saves me. The recovery from surgery is very quick. I scrolled back and tried to find your original post – but could not locate it.

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@lisalucier

Good to "hear" your update, @ladydove417. That's rough that you are feeling confused in the midst of the testing process. Very understandable.

I'd also like to introduce you to @parrotqueen @astaingegerdm @koryn @elmay @downeylynn, who also have talked about pituitary tumors.

When will you get the results and interpretation of the saliva test you were given, @ladydove417? Do you believe your doctor was saying that the breast discharge was likely unrelated?

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@lisalucier I was told it would be a few weeks before I got my silvia results. In his notes he's just doing this test to rule out Cushing's disease because he doesn't believe that's what I have. From what I understand they are uncertain about the cause of my issues.

Liked by Lisa Lucier

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@parrotqueen

Hey Ladydove. If you find you do have a pituitary adenoma, I'll be happy to talk with you about it. I have so many hormonal deficiencies! I have to take Armour thyroid, cortisol for adrenals, and Human Growth Hormone. I feel SO much better now. Try your best not to stress because that will only make hormonal imbalances worse and lead to more illness. Breathe – deep breaths from the lower belly – in through your nose, out through your mouth. That is what saves me. The recovery from surgery is very quick. I scrolled back and tried to find your original post – but could not locate it.

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@parrotqueen thank you and I'm glad you're feeling better. I will definitely reach out to you if they ever figure out my issues.

Liked by Lisa Lucier

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@ladydove417

@parrotqueen thank you and I'm glad you're feeling better. I will definitely reach out to you if they ever figure out my issues.

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@ladydove417 – just wanted to touch base and see if perhaps you've heard back on your saliva test?

@parrotqueen – you mentioned that your surgical recovery was very quick. Will you share a bit more about what your recovery was like (e.g., did you have a lot of pain? physical restrictions? need a lot of help from others right after the surgery?)?

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