I have Cerebral Small Vessel Disease - so far caused loss of balance

Hello , no that doesn’t happen to me , are you sure that’s not hormone related ?

I was diagnosed last year at 65 after several balance/fall issues. I have several areas with brain cell loss as well as lacunar strokes. Unfortunately, there is no treatment. My best advice is to live life to its fullest and keep knocking off that bucket list! Don't focus on things beyond your control. I think that most neurologists are reluctant to admit that there is nothing that they can do and try to avoid the difficult but necessary discussions regarding the natural progression of this disease.

Ps they put me on Statins for it but considering I don't have high cholesterol or high blood pressure had a reaction to them. I'm on 75mg Asprin for life due to having ischemic colitis & bled out....however I do feel a difference when I've not taken it..

Hi I'm in same boat 50yrs old had ischemic brain disease 4yrs later servere cerebrovascular disease & I'm asking Do you burn up while asleep to a point it wakes you up & cannot cool down but when I do I'm freezing cannot seem to control body temperature & a feeling my brain been squeezed?

Hello , I was just myself diagnosed with this 2 days ago after having 3 weeks of loss of balance and mood changes . I asked for an MRI and my dr gave me the result over the phone , she didn’t suggest any kind of treatment or discuss anything about the disease with me or even refer me to anyone . I’m only 53 years old . Not sure where I go from here .

I have this disease as well. I was diagnosed in August 2017. I’ve had a tough year with little support from my family. I had Covid plus ongoing changes with this disease. Stress makes it worse.
How am I coping…well tonight it tears and fears.
I try to keep busy with things that take my mind off the symptoms. As mentioned in other posts my doctors don’t want to talk with me about the progression if this disease.
Let’s try to hang in a little longer. I am hoping discussions with this group will help.

Thank you for reply & yes I've seen a Professor of Neurosurgery & due to location & size is in operable.
Sub Arachnoid cyst they are not sure if I was born with it or gained it when I was squashed by a stone wall about 4/5 yrs old...massive head bleed & have scare at back of skull & one on for head...Juli

Good morning and thank you for replying

I've already seen a neurosurgeon in 2019 & it was a wait and see, had another MrI April 2021 due to Pulsating Tinnitus starting, cut long story short visit ENT to be told its the blood vessels squashed due to neck which are vibrating against ear drum bloody awful somedays! Audiology give white noise earing aids try cut the sound down but to be honest after a while ears become painful .As for the statins I was prescribed Artovastatin which lead to servere muscle pain in calves & arms & pins needles hands & generally feeling lousy all over more than usual.
Having not got high blood pressure or cholesterol was dubious in taking them ...however they have given me Simvastatin to try not done so yet...
Arachnoid cyst was diagnosed by ENT due to Bells Palsey which my mother had also , was seen by a Professor of Neurosurgery who would not operate due to size & location & would lose the essence of who I am.However it explained alot of the symptoms I have had most of my life ...I get on with life even though its taken alot away ...not one for sympathy but understanding..Julie

Hello @angelicscripts,

I'm really sorry to hear of the multiple health problems you are having now. I can see that you have tried different medications and treatments.

You said, "waiting on the neurosurgeon. Are you now considering spinal surgery to correct the disc issues?

You mentioned a bad reaction to the statin you were taking, If you don't mind sharing more, what type of side effects did you have?

I look forward to hearing from you again. Will you post updates?

Hello @angelicscripts and welcome to Mayo Clinic Connect. I am sorry to hear of all of your complications in the last four years since your diagnosis.

You will notice that I have moved your post into an existing discussion on Cerebral Small Vessel Disease so that you may more quickly surround yourself with members who understand. The discussion can be found here for reference: https://connect.mayoclinic.org/discussion/i-have-vascular-small-vessel-disease-that-so-far-just-has-caused/

Members such as @keithl56 @kariulrich @hopeful33250 @helenfrances @avmcbellar and @oldsuzanne55 may be able to join and provide some much needed support.

Have you already consulted on your options for your cyst or just beginning that process?