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I have Cerebral Small Vessel Disease - so far caused loss of balance
I have vascular small vessel disease that so far just has caused a severe loss of balance. I walk with a cane, but it is getting harder. Likewise exercise is not easy. I still drive short distances. I feel perfectly normal lying down and it is so much easier to do that. The sad part is I don't really see anything that is going to end this as otherwise I am healthy. I know there are many worse things. Does anyone else have this and how are you coping?
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My husband has smell vessel disease of the brain he has had balance issues for aout 5 years than two years ago he had heart bypass surgery he devolped delirium in the hospital and after that his balance problem got 100 % worse and stayed thay way he hadva brief period last fall where he really started to improve but since then the disease has been progressing.if the dusease is in early stages you can slow the progession of it by keeping blood pressure under control as well as cholestrol stay active exericise your brain with crosswords computer work anything that challenges your brain if you smoke stop immediately eat a low fat diet all of which my husband wouldnt do now he has to work with whats left and its a stuggle for him walking is hard his eye sight has been effected every day is a challenge
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2 ReactionsMy husband has it also he struggles with balance he has many falls no longer can drive and needs to use a walker there is no treatment for it just physical therapy it helps to know we arent alone in this that there are others out there
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4 ReactionsMy husband has small vessel diease of the brain and i agree dictors cant really tell you what to expect some days are worse than others but all days are challenging
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1 ReactionWelcome @jc2buds. This is what I love about Connect! @jeans posted a question about Cavernous Malformation. While I couldn't connect her with a past member or recent conversations, you saw her message and jumped in.
@jc2buds Kerry, did I understand correctly that both you and husband have Cavernous Malformation or just your husband? You also mention lifestyle change you can make to slow the progression of disease. What changes have helped you?
What are some of the changes I can make? I'm afraid I'm probably not in the early stages but it's taken quite a while for anyone to send me for a MRI.
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1 ReactionThanks, Colleen. I am trying to read everything I can find on the subject.
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1 ReactionMy next appointment is July 6th. I think that the next steps will be to take more tests to see what's going on. They will talk to me about options and maybe have some ideas for headache pain other than aspirin. Hopefully they will have some ideas about meds for seizures.?
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1 ReactionI agree basically doctors cant tell you want to expect because they dont know themselves
It is a progressive dieases and there is no treatment for it but if it is in the early stages there are changes you can make to slow it down i have been livi g with the effects of it for a few years now my husband has it
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1 ReactionMy husband has it