1. < Heart & Blood Health
Profile picture for michele92

I have Recurrent Takotsubo. Does anyone else have this condition?

Posted by michele92 @michele92, Jul 31 10:59am

I have had 5 Takotsubo events. This a rare condition that they have not been able to fully understand. I had one as recently as June 21st this year. Along with that I also have microvascular dysfunction that no medication has helped control. I have nightly angina that started in Sept. 2019. I wake up with chest pain that last less than a minute then breakout in a sweat. Sometimes I can have this multiple times a night. I have had 5 sleep studies. I do not have apnea and they do not see anything on the cardiac monitor. Does anyone else have these conditions?

Interested in more discussions like this? Go to the Heart & Blood Health Support Group.

Profile picture for rashida
rashida | @rashida | Aug 1 1:50pm

@michele92 I have GERD and generalized anxiety so I get chest pains from time to time. In earlier years I was prescribed nitroglycerin sublingual tablets, but one day I was away from home without my tablets, so I decided to get a drink of water. A few sips and the pain eased off! The next time I had chest pain I again took some sips of water and the pain subsided. So I stopped the tablets (I let my doctor know, of course - I believe no medication should be stopped without one’s doctor’s knowledge!) and now I make sure I have a water bottle handy at my bedside because more often then not, that’s when I get my chest pains.

I googled Takosubo because I had never heard of this condition (I learn a lot through these Mayo Clinic Connection discussion threads!) and this is what I found:
https://my.clevelandclinic.org/health/diseases/17857-broken-heart-syndrome

REPLY
1 reply
Profile picture for michele92
michele92 | @michele92 | Aug 1 2:36pm
In reply to @rashida "@michele92 I have GERD and generalized anxiety so I get chest pains from time to time...." + (show)
Profile picture for rashida @rashida

@michele92 I have GERD and generalized anxiety so I get chest pains from time to time. In earlier years I was prescribed nitroglycerin sublingual tablets, but one day I was away from home without my tablets, so I decided to get a drink of water. A few sips and the pain eased off! The next time I had chest pain I again took some sips of water and the pain subsided. So I stopped the tablets (I let my doctor know, of course - I believe no medication should be stopped without one’s doctor’s knowledge!) and now I make sure I have a water bottle handy at my bedside because more often then not, that’s when I get my chest pains.

I googled Takosubo because I had never heard of this condition (I learn a lot through these Mayo Clinic Connection discussion threads!) and this is what I found:
https://my.clevelandclinic.org/health/diseases/17857-broken-heart-syndrome

Jump to this post

Thank you for the information you suggested. I was treated earlier for GERD without any comfort. I have subsequently been diagnosed after a angiogram provocation test to have MVD. They have tried multiple medications without any relief. But I appreciate your consideration with what has worked for you. Yes the Takotsubo is an interesting read without complete results as well.

REPLY
Profile picture for Justin McClanahan, Moderator
Moderator
Justin McClanahan, Moderator | @JustinMcClanahan | Aug 13 9:25am

Hello @michele92, I'd like to invite @megan1853, @amialonehere24, @octopus, @lorimos, @mrsrayh79, and @babsyriek who have all talked about Taketsubo cardiomyopathy.

@megan1853 started a discussion titled:
"Takotsubo cardiomyopathy--working out???"
- https://connect.mayoclinic.org/discussion/takotsubo-cardiomyopathy-working-out/

@megan1853, how are you currently doing with your diagnosis? Are you still experiencing issues with sleeping?

REPLY
Please sign in or register to post a reply.