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Are my symptoms related to my meningioma? Neurosurgeon or neurologist?
I had CT it showed a meningioma, left frontal lobe. I have been having symptoms for a while now but they are getting worse and more frequent. Constant headaches, tremors, inadequate vision, hearing loss, balance issues. So I guess my question is: could these symptoms be related to just getting older? My decrease in medication?
I’m 49 and I have been through some traumatizing events in my life- In 2015 I started on some antidepressants and stimulants. Over the past couple of years is when I noticed the symptoms. They (the symptoms) could have been going on before then but I just brushed them off, thinking it was just part of getting older.
My family keeps telling me that I will be fine because the meningiomas are almost always benign. I understand this but I want to feel normal. I don’t know what it’s like to not have headaches or not having balance issues, ect. Because I have been so heavily medicated for the past 10 years.
I also don’t understand why I just can’t see a neurologist instead of a neurosurgeon. The only reason I ask that is because I live in a small town and have more accessibility to a neurologist. Can’t they just do a scan every x month and send the images to a neurosurgeon? Or is there more going on that they didn’t tell me? Actually nobody has said anything except my doctor that originally ordered the CT said I would have to see a neurosurgeon- that’s it. I’m so frustrated, anyway my appointment is October 2.
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I am so very sorry to be incorrectly referring this literature I found to the Mayo Clinic. The information packet was put together by the American Brain Tumor Association. I found their website on line. The following is contact information from their literature:
Careline - 800-886-ABTA (2282)
Email: info@abta.org
Visit: abta.org
Address: American Brain Tumor Association
8550 W. Bryn Mawr Ave.
Suite 550
Chicago, IL 60631
Please accept my apologies for my error. I hope my error did not cause you too much anguish. Hopefully you will be able to find this organization. Finding the ABTA certainly raised my spirits simply by putting some light in a dark period.
I wish you all the best.
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1 ReactionHello all! I made an error in referring to the fantastic literature I received and thought it was from the Mayo Clinic Community. I apologize for any anguish or frustration to all who have looked for this information.
The information packet I referred to is from the American Brain Tumor Association. Below is their contact information:
American Brain Tumor Association
8550 W Bryn Mawr Ave
Suite 550
Chicago, IL 60631
800-886-ABTA (2282)
Email: info@abta.org
Visit: abta.org
I found them on line. There is a series of questions asked so they can send the relevant information. (Some you may need to take a guess. Don’t panic.) This association deals with more than just meningiomas. They have educational brochures (more like books/pamphlets) “for newly diagnosed patients and caregivers, including a brain tumor primer, tumor types and treatments.”
Educational webinars with nationally recognized experts are held where they discuss topics for newly diagnosed, survivors and importantly - caregivers.
They offer up-to-date information for all who are dealing with any type of brain tumors, research, support services available, resources for caregivers, brain tumor treatment centers and support group locators.
I strongly recommend anyone dealing with any type of brain tumor take the time (don’t hesitate) and explore this group. They are not a scam; just a much needed organization that has not received the acknowledgment and recognition like ALS, Alzheimer’s, cystic fibrosis, etc.
Lastly, my prayers, encouragement, and peaceful thoughts to all of you.
Many blessings, G
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6 Reactions@mtngirl21, I hope you saw @gjcremers's response here: https://connect.mayoclinic.org/comment/1405570/
The package is from the American Brain Tumor Association https://www.abta.org/
https://www.abta.org/product-category/for-patients-and-caregivers/
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3 Reactions@gjcremers --thank you so much. You are so kind to send such detailed info when you are going through so much. I will reach out to them. My prayers are with you. blessings
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3 Reactions@colleenyoung -- yes just saw it. thank you so much for taking the time to share with me the details. Ive ordered the information from them. Appreciate it. blessings
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3 Reactions@gjcremers Thanks for the information. No need to apologize!