I have melanoma of the eye

Posted by elc90 @elc90, May 26 4:49pm

Cant decide what treatment proton or radiation my doctor wants to do a radiation cab it scares me . Did anybody have the proton treatment done what are the side affects have to make my decision this week

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leigha67 | @leigha67 | Jun 5 5:34pm

Hi there. I had pbt (proton beam radiation) therapy in December.
They first did a quick surgery to place tantalum rings around my eye. It was not bad, as surgeries go, with minimal pain. They gave me narcotics but I just took tylenol. My eye was bandaged for only a day.
A few days after that, I had the proton beam radiation for 5 days running.
The biggest side effect I noticed was being tired earlier than usual in the evenings.
The radiation only goes in your eye for about 15 seconds a day.
But it's an increasing dose, typically, and I just didn't expect to tire so easily.
I changed my diet, got more exercise, and I'm back to normal now.
I do experience extreme dry eyes and I use a ton of gel drops and regular drops. I've lost some vision, and fluid built up under the tumor, so I've been getting Avastin shots in my eye to lower that and they are working.