I have liver cancer: What next?

Posted by donnabl @donnabl, Jun 29, 2024

Hi my name is Donna I have liver cancer and I can't get a liver transplant because my tumor grew and they can't do anything I'm scared and idk what to do next please help thanks 👍

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@blm47

Hi Colleen , BLM47 here, I'm kinda lost but I'm looking for people who remember early signs of gallbladder/liver cancer and diagnosis and treatments ect. Can you please help me connect.

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Hello BLM47,
Hoping you are doing well. The early signs of my liver cancer came after many years of Hep c infection which caused cirrhosis. I was not able to get a cure for the hep c until 2019. The cirrhosis progressed to liver cancer that was small with really no extra symptoms besides more fatigue. Then I began to have discomfort on my right side under my ribs. The tumor was discovered by MRI and monitored by my docs at Mayo Jacksonville until it reached 2 cm and then ablated. I have gastrointestinal problems and still have fatigue. What information are you looking for? Here are a couple of websites to explore.
https://www.mayoclinic.org/diseases-conditions/cirrhosis/symptoms-causes/syc-20351487
https://liverfoundation.org/liver-diseases/complications-of-liver-disease/cirrhosis/
Wishing you the best.

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@donnabl

Thank you I'm glad ur doing well ☺️ hope all is going good for you and yes I'm ready to get this y90 done and see what the outcome is thanks for the response and have a blessed Sunday and prayers for all the cancer people 🙏

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How are you doing? I haven’t seen you here in a while. Did your Y90 work out? Wishing you the best outcome possible.

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@colleenyoung

Hi @donnabl, hearing that you have cancer is scary. Liver cancer can be treated in many different ways. Transplant is only one treatment option.

Do you know what type of liver cancer you have and what stage? Are you being seen at a cancer center? How are you doing?

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Hi Colleen , BLM47 here, I'm kinda lost but I'm looking for people who remember early signs of gallbladder/liver cancer and diagnosis and treatments ect. Can you please help me connect.

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@parrot53

@donnabl Thank you I am doing well after an ablation two years ago. I am now on a four month surveillance program to be sure my tumor does not recur. Very thankful for that. Glad to hear you are feeling a bit better after Covid. Best of luck in September.

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Thank you I'm glad ur doing well ☺️ hope all is going good for you and yes I'm ready to get this y90 done and see what the outcome is thanks for the response and have a blessed Sunday and prayers for all the cancer people 🙏

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@donnabl Thank you I am doing well after an ablation two years ago. I am now on a four month surveillance program to be sure my tumor does not recur. Very thankful for that. Glad to hear you are feeling a bit better after Covid. Best of luck in September.

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@parrot53

@donnabl just checking in to see how you are doing. I know your Y90 treatment is coming up in September. I do hope you are over your bout of Covid and feeling a little better. Sending you good thoughts and best results possible on your Y90 treatment.

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Hello how are you doing I'm fine I got over covid I had it for 8 days body hurts thoe how are you doing yes I'm ready to do the y90 kinda scared but I need this done and thanks for thinking about me and I hope you the best in live and prayers for all that has cancer 🙏🙏🙏🙏 prayers for you to parrot 53

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@donnabl

Well a little about my self I got my gallbladder removed in 2018 and mind you it broke open and I was in the hospital for 5 days almost at deaths door but I can out of it and when the Dr came in told me that I had a fatty liver I didn't ask much more and she didn't tell me anything more it's just a fatty liver so I go on with my life then in 2023 I start getting bad back pain hurt to lay on my right side plus I was having bad stomach pains so I go to the ER and they did a MRI and found a tumor on liver so that was in November of 2023 and the sent me to do a biopsy and it was cancer told me I need a liver transplant so I was getting my body ready for a transplant then they did a brian and bone scan to see if it spreading but it was ok the Dr said then I started getting ready to go to Minnesota to get on the transplant list and all turned around and went to good to worse so I can't get the transplant be cause the tumer grew over the limit of the transplant 😭 but now I have a second opinion to do the Y90 treatment so I'm heading up to Minnesota in September kinda scared I'll have it all done in a week hopefully the tumor gets smaller to the point I can get a liver transplant so yes that my story of my cancer I have my kids by my side im greatfull for that sending prayers to all with cancer

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@donnabl just checking in to see how you are doing. I know your Y90 treatment is coming up in September. I do hope you are over your bout of Covid and feeling a little better. Sending you good thoughts and best results possible on your Y90 treatment.

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@donnabl

Well a little about my self I got my gallbladder removed in 2018 and mind you it broke open and I was in the hospital for 5 days almost at deaths door but I can out of it and when the Dr came in told me that I had a fatty liver I didn't ask much more and she didn't tell me anything more it's just a fatty liver so I go on with my life then in 2023 I start getting bad back pain hurt to lay on my right side plus I was having bad stomach pains so I go to the ER and they did a MRI and found a tumor on liver so that was in November of 2023 and the sent me to do a biopsy and it was cancer told me I need a liver transplant so I was getting my body ready for a transplant then they did a brian and bone scan to see if it spreading but it was ok the Dr said then I started getting ready to go to Minnesota to get on the transplant list and all turned around and went to good to worse so I can't get the transplant be cause the tumer grew over the limit of the transplant 😭 but now I have a second opinion to do the Y90 treatment so I'm heading up to Minnesota in September kinda scared I'll have it all done in a week hopefully the tumor gets smaller to the point I can get a liver transplant so yes that my story of my cancer I have my kids by my side im greatfull for that sending prayers to all with cancer

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@donnabl, I have located some more information aboyt the Y90 treatment for you as you await your appointment and Y90 treatment that is scheduled for September.
- Targeted radiation therapy: Y-90 and liver cancer
https://cancerblog.mayoclinic.org/2023/10/03/targeted-radiation-therapy-y-90-and-liver-cancer/
I hope that you found some helpful details about the treatment and how it will be administered.

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@donnabl

I'm so sick I have covid and I can't take anything for my headache I'm hurting bad any body knows what can help with my body and headache please let me know thanks

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@donnabl, I am sorry to hear that you are down with covid. I know that you are no yet a transplant recipient, but I do want to share this discussion with you.
-Covid treatment- any recent experience?
https://connect.mayoclinic.org/discussion/covid-treatment-any-recent-experience/
Donnabl, I am going to tag you to that group as soon as I send this.

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@parrot53

Hello @donnabl i am so sorry to hear you have Covid. At least you will be over it before your Y90 treatment in September. Have you been told not to take Tylenol by your docs? Sometimes a cool washcloth can bring some relief for a headache but of course it will do nothing for body aches. Thinking of you and hoping you feel better soon.

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Yes nothing with Tylenol I'm feeling a little better this morning but ya I'm glad i will be better soon and thank you for the prayers 🙏💖 how have you been doing hope all is good with you 💗 have a blessed day and prayers for all with cancer 🙏

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