I have had E. coli since 2018.

Posted by jrue373 @jrue373, 5 days ago

I have had E. coli since 2018. I’m no longer responding to antibiotics. Doctors all tell me this is common and women deal with this all the time. I’m peeing blood and am in agonizing pain sometimes. They all give me a UTI and STI test over and over and it comes back negative. Where else do I go?

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Laurie, Volunteer Mentor | @roch | 5 days ago

@jrue373
Welcome to Mayo Connect. I normally do not get UTI, but just tested positive last week despite no symptoms. When they also did a bacteria culture of urine, it showed e-coli.

Can you expand on what is being tested for e-coli, your urine?

dlydailyhope | @dlydailyhope | 5 days ago

@jrue373
How did you first get E. coli infection? Are you getting blood tests for E. coli?

Peeing blood and having significant pain is NOT normal and NO, women should not be ignored and allowed to suffer! Fire this doctor!

What types of specialists are you working with? Are you seeing/working with a gastroenterologist, urologist

1. https://www.mayoclinic.org/diseases-conditions/e-coli/diagnosis-treatment/drc-20372064
2. https://my.clevelandclinic.org/health/diseases/16638-e-coli-infection
3. https://www.cdc.gov/ecoli/treatment/index.html
4. https://www.verywellhealth.com/e-coli-symptoms-diagnosis-treatment-4174407
5. https://www.healthline.com/health/e-coli-infection
6. https://microbiologysociety.org/blog/the-resistance-how-e-coli-learns-to-fight-our-most-potent-antibiotics.html
7. https://innovatemed.org/antibiotic-resistant-e-coli-new-strategies-to-fight-infections/
8. https://www.contagionlive.com/view/combinations-of-up-to-5-antibiotics-may-work-against-resistant-e-coli
9. https://news.stonybrookmedicine.edu/news/scientists-propose-new-strategy-for-fighting-antibiotic-resistance/

ckoehring | @ckoehring | 1 day ago

First, you need a specialist is you are not seeing one. Secondly, if you do not have one, I recommend getting a bidet right away and use it every time you go to the toilet. I am 74 and had UTI's for several years, numbering about 6 per year, which I think is a lot. Every time my doc gave me meds, I got over it, but she said we had got to get these under control or else meds would cease to work.
One day while reading on the internet and trying to figure out what was causing all the uti's I read that almost all UTI's were caused by E.coli. They mentioned to get a bidet. I got one about a year ago, use it every single time I go to the toilet, and I have not had a UTI since. I have told my doctor to encourage women with UTI's to get bidet's. They work. I think mine was 50 bucks on Amazon. They easily hook to your toilet in just a few minutes. You don't need the fancy kind. The cold water isn't as bad as it sounds.
Seriously, it's been over a year and I'm UTI free. Not saying I will never get another, but certainly not if I can help it! Good luck to you.

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