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I have had E. coli since 2018.
I have had E. coli since 2018. I’m no longer responding to antibiotics. Doctors all tell me this is common and women deal with this all the time. I’m peeing blood and am in agonizing pain sometimes. They all give me a UTI and STI test over and over and it comes back negative. Where else do I go?
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@jrue373
Welcome to Mayo Connect. I normally do not get UTI, but just tested positive last week despite no symptoms. When they also did a bacteria culture of urine, it showed e-coli.
Can you expand on what is being tested for e-coli, your urine?
@jrue373
How did you first get E. coli infection? Are you getting blood tests for E. coli?
Peeing blood and having significant pain is NOT normal and NO, women should not be ignored and allowed to suffer! Fire this doctor!
What types of specialists are you working with? Are you seeing/working with a gastroenterologist, urologist
1. https://www.mayoclinic.org/diseases-conditions/e-coli/diagnosis-treatment/drc-20372064
2. https://my.clevelandclinic.org/health/diseases/16638-e-coli-infection
3. https://www.cdc.gov/ecoli/treatment/index.html
4. https://www.verywellhealth.com/e-coli-symptoms-diagnosis-treatment-4174407
5. https://www.healthline.com/health/e-coli-infection
6. https://microbiologysociety.org/blog/the-resistance-how-e-coli-learns-to-fight-our-most-potent-antibiotics.html
7. https://innovatemed.org/antibiotic-resistant-e-coli-new-strategies-to-fight-infections/
8. https://www.contagionlive.com/view/combinations-of-up-to-5-antibiotics-may-work-against-resistant-e-coli
9. https://news.stonybrookmedicine.edu/news/scientists-propose-new-strategy-for-fighting-antibiotic-resistance/
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3 ReactionsFirst, you need a specialist is you are not seeing one. Secondly, if you do not have one, I recommend getting a bidet right away and use it every time you go to the toilet. I am 74 and had UTI's for several years, numbering about 6 per year, which I think is a lot. Every time my doc gave me meds, I got over it, but she said we had got to get these under control or else meds would cease to work.
One day while reading on the internet and trying to figure out what was causing all the uti's I read that almost all UTI's were caused by E.coli. They mentioned to get a bidet. I got one about a year ago, use it every single time I go to the toilet, and I have not had a UTI since. I have told my doctor to encourage women with UTI's to get bidet's. They work. I think mine was 50 bucks on Amazon. They easily hook to your toilet in just a few minutes. You don't need the fancy kind. The cold water isn't as bad as it sounds.
Seriously, it's been over a year and I'm UTI free. Not saying I will never get another, but certainly not if I can help it! Good luck to you.
My dougther have recurrence uti,double bilateral ureters were fit soon after the diagnosis,she was in antibiotics profiilaxis for many years,recurrent infections never stop.She is 30 years old today was the last inf.were in the hosp.dr put her in Aumegting just trying? Is this correct?
What you're experiencing is not common and not ok. You should not be experiencing pain and seeing blood!!!!! I too have been experiencing chronic UTIs and feel like the medical community doesn't listen to women that are experiencing this. I've had many test for UTI come back negative, but I still am given antibiotics. The best advise I can give you is to go to LiveUTIfree.com. They have amazing resources!!!! You could possibly have embedded bacteria. Please let me know how it goes.