I have Dupuytren's Contracture Disease . How can I cope with this?

Posted by Etta Dutch @ettadutch, Oct 17, 2011

I have Dupuytren's Contracture Disease . How can I cope with this?

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Fighting this horrible painful disease, I can't take anti inflammatory meds because of high blood pressure ... has anyone else experienced this disease and how are you treating it?

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@noelleklein

Fighting this horrible painful disease, I can't take anti inflammatory meds because of high blood pressure ... has anyone else experienced this disease and how are you treating it?

Jump to this post

Welcome @noelleklein, Sorry to hear you are struggling with this painful condition. You will notice that we moved your post to an existing discussion on the same topic below so that you can connect with members and learn what they have shared helps:

-- I have Dupuytren's Contracture Disease . How can I cope with this?: https://connect.mayoclinic.org/discussion/i-have-dupuytrens-contracture-disease-how-can-i-cope-with-this/

@rosemarya @capausz @lioness and @cindiwass have experienced similar issues and may have some suggestions. You might also like to read this reference info:
-- Dupuytren's contracture – Diagnosis & Treatment:
https://www.mayoclinic.org/diseases-conditions/dupuytrens-contracture/diagnosis-treatment/drc-20371949

Did your doctor have any suggestions for anti inflammatory medications that do not interact with your blood pressure meds?

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@noelleklein

Fighting this horrible painful disease, I can't take anti inflammatory meds because of high blood pressure ... has anyone else experienced this disease and how are you treating it?

Jump to this post

@noelleklein, My husband has Dupuytren's Contracture. He was treated by a Hand Surgeon, years ago, with an injection. It is coming back with the knots in the palm of hand becoming noticeable, however it is not (yet) interfering with daily life and he can still flatten palm on flat surface. He has consulted with the doctor, and he is not ready to seek treatment' which likely be surgery. At the time of his consult 3 years ago they were not recommending the injection anymore. But that might be different now.
Noelle, He does not have any accompanying pain, and this does not interfere with normal activity. Since you describe your experience as horrible and painful, I assume that it is interfering with your daily life. Have you considered consulting with a Hand Specialist about this?

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My ortho hand surgeon said it is a very simple operation will be doing mine when I get my thumb operated On.

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What about the fact that Dupuytren's disease causes early death and makes one more prone to cancer? I guess there will be no more pain or cancer when early death strikes!

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@grammargal

What about the fact that Dupuytren's disease causes early death and makes one more prone to cancer? I guess there will be no more pain or cancer when early death strikes!

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Wow, I never heard either of those risks associated with Dupuytrens. Can you cite a source for that information?
I suppose it could be theorized that there is a higher risk since Dupuytrens is more common in people who have been long time smokers and heavy consumers of alcohol.

Here is what Mayo Clinic has to say about it:
https://www.mayoclinic.org/diseases-conditions/dupuytrens-contracture/symptoms-causes/syc-20371943
No additional risks or cautions are noted there.
Sue

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@rosemarya

@noelleklein, My husband has Dupuytren's Contracture. He was treated by a Hand Surgeon, years ago, with an injection. It is coming back with the knots in the palm of hand becoming noticeable, however it is not (yet) interfering with daily life and he can still flatten palm on flat surface. He has consulted with the doctor, and he is not ready to seek treatment' which likely be surgery. At the time of his consult 3 years ago they were not recommending the injection anymore. But that might be different now.
Noelle, He does not have any accompanying pain, and this does not interfere with normal activity. Since you describe your experience as horrible and painful, I assume that it is interfering with your daily life. Have you considered consulting with a Hand Specialist about this?

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My husband also has it. He had the injection, which helped for a few years. Now they have an outpatient surgery to cut the tendons and straighten his hand when it gets annoying again . He doesn't have pain either. You may have something additional. I agree with seeing a specialist for hands. Good luck!

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@grammargal

What about the fact that Dupuytren's disease causes early death and makes one more prone to cancer? I guess there will be no more pain or cancer when early death strikes!

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I never heard of that. Northern European descent is another risk factor. My sister has it and doesn't drink or smoke but is of European descent .

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@noelleklein

Fighting this horrible painful disease, I can't take anti inflammatory meds because of high blood pressure ... has anyone else experienced this disease and how are you treating it?

Jump to this post

@noelleklein Good Morning. I certainly sympathize with you. I've had/have Dupytryn's Contracture (sp?) over the years and I know it's very painful. As a professional artist, I eventually had difficulty even holding a paintbrush, or even holding the steering well of my car, vacuuming, etc. I was referred for physio at the local hospital, which included specific hand exercises and the construction of various types of innovative splints to keep my hands as open as possible or to help protect me from more pain.
Surgery was finally necessary and I was referred to a Hand Surgeon. The surgery was done one hand at a time, and a year apart. That was followed by quite extensive physio again, but I'm happy to say my hands are PERFECT now! No more pain, no more contracture!!
I can use them just as I did in my younger days. Good luck to you on the road to recovery. Our hands are so very important to our quality of life! Warmest wishes, Laurie

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I am French and my brother had this issues as well.

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