I have c diff
I have recently been diagnosed with c diff. I am currently on vancomycin 125mg four times a day. I have been bleeding for over 2 months now regularly with no solid movements whatsoever. I have urgency in the mornings and have to run to the bathroom only to be issues of blood and coffee ground feces, nothing ever solid. I just had a colonoscopy last Monday if showed diverticulum in the transverse colon and inflammation in the sigmoid colon in four different places. my question is when will I get better?? I have been dealing with this for a long time and it is debilitating. Will the vancomycin give me solid movements and will it stop the blood issues?? I just need to talk to someone who can identify with what I have. I have to call my gastro at the end of the week to let her know how I am doing. if I still have this what will be the next step?? Also, has anyone else with c diff smell an odor on themselves and when they go?? does c diff have a distinctive odor?
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I have c diff and have had it for almost 2 years I am finally getting an FMT however here is my question.
Do c diff patients have memory issues, disoriention, confusion?? Details and any info will be helpful
I didn't have any issues other than the weight loss and belly pain. I was on antibiotics for roughly 29 days for a UTI that was misdiagnosed. I developed C-diff as a result of this and lost 20 pounds in less than 2 weeks. I was placed on vancomycin for approximately 60 days and that took care of the problem. I was also taking Bio-K plus probiotics for approximately 3 months and now take Florastor daily and have had no further issues. I hope this helps. I know how miserable C-diff is.
Welcome @dpete19743, I added your message to the Digestive Health group where you'll also find these discussions on C-difficile:
I'd also like to bring in fellow members @pines @plm2019 @sue6408 @annapocono @ngorman25 @sarasally2 along with @fotula into this discussion.
Pete, when will you have the fecal microbiota transplant (FMT)? Have you noticed the cognitive issues only since contracting c-difficile?
@dpete19743 I developed Cdiff after taking Clindamycin for a sinus infection. I went through 4 Cdiff episodes in 2018 before taking Dificid (fidaxamicin) which finally worked for me. Prior to that I took Vancomycin for the 2nd and 3rd bout. For the 3rd bout, I did the Vanco pulse and taper for 6 weeks. The only real side effects from the meds are now I have a ringing in my ears. (Tinnitus) And I also have terrible gas late and night and early in the morning when I first get up which I think is related to Cdiff. I also now take Florastor or a probiotic with S Boulardii which was recommended by my gastroenterologist.
If you don’t mind me asking. How are what fmt are you getting. Last I heard the fecal transplant was suspended due to a death in July, 2019 in St. Louis Missouri (where I live ) . I was supposed to get one in 2017 and need now but cannot afford but I might get a option soon and am curious if the status moved from suspension.
I also have severe cognitive issues since my last and worst episode in 2017 when I was septic. Can you expand on yours because I feel like I’m slipping away. Honestly.
I finally had the FMT after not being able to cure c-diff, I searched for a doc that would do it, very expensive and insurance wouldn't cover a donor but a gastro doc right where I live did it for me calling it a colonoscopy, he provided the donor. I don't think I ever recovered then recently I had to go on antibiotics again and nearly fell apart from worry, I have taken florastor for five years but after this last five different antibiotics I took another probiotic, visbiome, I think it was called, very expensive but I didn't care, still worried.
I didn't notice my memory issues it was pointed out to me by friends, family, my attorney and now one of my clients. According to all of them I have been showing memory issues just in the past year. I can't remember some conversations, dates, times and places. Hope this helps if you need more detail I can share more.
Mayo clinic never told me it was suspended. The FDA has never approved of FMT I believe the donor stools from the deaths that occurred have been suspended and can't be used in future transplants. I tried to post the link to the article but this sight won't allow it
I know the feeling Im not remembering dates, times, conversations that take place, apparently I repeat questions I ask people not even realizing it. Apparently my memory has become bad enough people around me are noticing. Hope that helps and my prayers are with you