please help me out to know what to do
it is not cancer but will turn to cancer in the future
I pray about it ask Lord give me wisdom to decide what to do.
Have you discussed this with your doctor, a surgeon, or oncologist? I don't think it will necessarily turn to cancer (but I'm no doctor), and perhaps can be monitored. What advice have you been offered? I'd try and get more information, and factor in your age and general health. This can be upsetting as a diagnosis, but I'm hoping you can find out what you need for a good outcome.
I had the same - it doesn't always turn into cancer, but it can. Whether it does or not is related to many variables. When I had a lumpectomy for the atypical they found a second pre-cancer, LCIS. These two cancers plus my personal, family, and genetic history brought my lifetime BC risk (in either breast) up to 40% - I did not carry a BRACA mutation but another. To me 40% might as well be 50; which is a flip of a coin! So I cut to the chase and did a DMX. Both breasts were benign - which momentarily made me pause and think maybe I shouldn't have had the DMX. X but after reading what others have gone through (new diagnosis later or second, third fourth lumpectomy; radiation and possible problems; chemo side effects, etc) I knew I had made the right choice for me. There are simply no best answer for everyone. Knowing my risk number (and BTW risk naturally goes up as we age) and participating in Mayo connect threads, and other BC orgs , felt like educated myself well before I made my decision. It's the best we can do for ourselves...
BTW I am 63 and decided to stay flat (no implants to avoid future surgeries and problems) and I am happy with my decision. Grateful to have been benign in both breast at DMX as I avoided radiation and chemo. I had my surgery July 9 and I'm almost fully recovered. A bit of residual lymphedema.... and of course, incisions are still healing internally.
Good luck with making your decisions and I wish you the best possible outcome!
I had the same - it doesn't always turn into cancer, but it can. Whether it does or not is related to many variables. When I had a lumpectomy for the atypical they found a second pre-cancer, LCIS. These two cancers plus my personal, family, and genetic history brought my lifetime BC risk (in either breast) up to 40% - I did not carry a BRACA mutation but another. To me 40% might as well be 50; which is a flip of a coin! So I cut to the chase and did a DMX. Both breasts were benign - which momentarily made me pause and think maybe I shouldn't have had the DMX. X but after reading what others have gone through (new diagnosis later or second, third fourth lumpectomy; radiation and possible problems; chemo side effects, etc) I knew I had made the right choice for me. There are simply no best answer for everyone. Knowing my risk number (and BTW risk naturally goes up as we age) and participating in Mayo connect threads, and other BC orgs , felt like educated myself well before I made my decision. It's the best we can do for ourselves...
BTW I am 63 and decided to stay flat (no implants to avoid future surgeries and problems) and I am happy with my decision. Grateful to have been benign in both breast at DMX as I avoided radiation and chemo. I had my surgery July 9 and I'm almost fully recovered. A bit of residual lymphedema.... and of course, incisions are still healing internally.
Good luck with making your decisions and I wish you the best possible outcome!
I did the same. After been diagnosed with ALH with microcalcifications in 2022. And 6 biopsies in the same breast(one every 6 months approx.) for other benign findings (PASH, stromal fibrosis, fibrocystic changes, cysts, among others). My sister with DCIS at age 36, I didn’t carry any mutation, my age 53 and very dense breast tissue my risk was 40%. After all that I made the decision to do the risk reduction mastectomy on 07/25/25. The biopsy came back negative to cancer but I had in the other breast ALH that didn’t show in my last mri and mammogram 6 months ago. I’m still recovering but dealing with lymphedema and cording in my right arm. I did reconstruction at the same time.
Wishing you all the best!!
I had the same - it doesn't always turn into cancer, but it can. Whether it does or not is related to many variables. When I had a lumpectomy for the atypical they found a second pre-cancer, LCIS. These two cancers plus my personal, family, and genetic history brought my lifetime BC risk (in either breast) up to 40% - I did not carry a BRACA mutation but another. To me 40% might as well be 50; which is a flip of a coin! So I cut to the chase and did a DMX. Both breasts were benign - which momentarily made me pause and think maybe I shouldn't have had the DMX. X but after reading what others have gone through (new diagnosis later or second, third fourth lumpectomy; radiation and possible problems; chemo side effects, etc) I knew I had made the right choice for me. There are simply no best answer for everyone. Knowing my risk number (and BTW risk naturally goes up as we age) and participating in Mayo connect threads, and other BC orgs , felt like educated myself well before I made my decision. It's the best we can do for ourselves...
BTW I am 63 and decided to stay flat (no implants to avoid future surgeries and problems) and I am happy with my decision. Grateful to have been benign in both breast at DMX as I avoided radiation and chemo. I had my surgery July 9 and I'm almost fully recovered. A bit of residual lymphedema.... and of course, incisions are still healing internally.
Good luck with making your decisions and I wish you the best possible outcome!
You made a very wise decision, stopping the atypical hyperplasia cells from developing into cancer cells. Once the cells turn into cancer cells, you can never have the peace of mind that all cancer cells are gone despite all the treatments you receive. My hat is off to you!
I had dense breasts and microcalcifications my entire life. In Dec. 2024 everything went south.
Invasive cancer plus 2 areas of atypical ductal hyperplasia in both breasts, age 70.
Yes, those 2 areas of hyperplasia were just waiting to turn cancerous. It was a no brainer for me, bilateral mastectomy in May 2025.
Everyone is different, your team must look at the whole picture/your mammogram history, etc....at the very least your abnormal areas must be monitored very closely, probably every 6 months.
If I were you, I would want peace of mind and have them surgically removed before these areas become "invasive cancer" as undoubtedly mine did. Again, it's a personal decision. But my oncology wanted them removed. I have no regrets at all. This is only my personal story. Do what's right for you, what's in your mind and heart and trust your instincts. The very best of luck to you!
please help me out to know what to do
it is not cancer but will turn to cancer in the future
I pray about it ask Lord give me wisdom to decide what to do.
Would like to know what you decided to do. I am in the same boat now. Breast surgeon ordered a breast MRI so I am doing research on whether the results can inform surgery vs. monitoring. I was on hormone replacement therapy (which could be a cause of the hyperplasia) for a year and stopped it after the diagnosis.
Hi, glad your daughter didn't have to go through surgery and her ADH went away without treatment. If you don't mind sharing the decision behind going the monitoring route? Did your daughter get a breast MRI? Did her doctor give her a choice between surgery and monitoring?
I recently got diagnosed with ADH but the pathology report indicated 'mild and low-grade'. Breast surgeon ordered a breast MRI (3 weeks out, ugh, more waiting) but she said surgery would still be the next step. This is very anxiety inducing. 🙁
Thanks for your time.
Hi, glad your daughter didn't have to go through surgery and her ADH went away without treatment. If you don't mind sharing the decision behind going the monitoring route? Did your daughter get a breast MRI? Did her doctor give her a choice between surgery and monitoring?
I recently got diagnosed with ADH but the pathology report indicated 'mild and low-grade'. Breast surgeon ordered a breast MRI (3 weeks out, ugh, more waiting) but she said surgery would still be the next step. This is very anxiety inducing. 🙁
Thanks for your time.
@travelbugtwiggy
Would be so happy to share more, but my daughter is 50 and lives in another state. Really not sure what was done and how decisions were made, but it went away very quickly after it appeared. She still just monitors.
I know how worrying it can be. Keep asking questions until you are comfortable.
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please help me out to know what to do
it is not cancer but will turn to cancer in the future
I pray about it ask Lord give me wisdom to decide what to do.
-
Like -
Helpful -
Hug
1 ReactionHave you discussed this with your doctor, a surgeon, or oncologist? I don't think it will necessarily turn to cancer (but I'm no doctor), and perhaps can be monitored. What advice have you been offered? I'd try and get more information, and factor in your age and general health. This can be upsetting as a diagnosis, but I'm hoping you can find out what you need for a good outcome.
I had the same - it doesn't always turn into cancer, but it can. Whether it does or not is related to many variables. When I had a lumpectomy for the atypical they found a second pre-cancer, LCIS. These two cancers plus my personal, family, and genetic history brought my lifetime BC risk (in either breast) up to 40% - I did not carry a BRACA mutation but another. To me 40% might as well be 50; which is a flip of a coin! So I cut to the chase and did a DMX. Both breasts were benign - which momentarily made me pause and think maybe I shouldn't have had the DMX. X but after reading what others have gone through (new diagnosis later or second, third fourth lumpectomy; radiation and possible problems; chemo side effects, etc) I knew I had made the right choice for me. There are simply no best answer for everyone. Knowing my risk number (and BTW risk naturally goes up as we age) and participating in Mayo connect threads, and other BC orgs , felt like educated myself well before I made my decision. It's the best we can do for ourselves...
BTW I am 63 and decided to stay flat (no implants to avoid future surgeries and problems) and I am happy with my decision. Grateful to have been benign in both breast at DMX as I avoided radiation and chemo. I had my surgery July 9 and I'm almost fully recovered. A bit of residual lymphedema.... and of course, incisions are still healing internally.
Good luck with making your decisions and I wish you the best possible outcome!
-
Like -
Helpful -
Hug
5 ReactionsMy daughter had it. They decided to just watch it and continue to check it every 6 months and it disappeared.
Everyone is different.
I did the same. After been diagnosed with ALH with microcalcifications in 2022. And 6 biopsies in the same breast(one every 6 months approx.) for other benign findings (PASH, stromal fibrosis, fibrocystic changes, cysts, among others). My sister with DCIS at age 36, I didn’t carry any mutation, my age 53 and very dense breast tissue my risk was 40%. After all that I made the decision to do the risk reduction mastectomy on 07/25/25. The biopsy came back negative to cancer but I had in the other breast ALH that didn’t show in my last mri and mammogram 6 months ago. I’m still recovering but dealing with lymphedema and cording in my right arm. I did reconstruction at the same time.
Wishing you all the best!!
-
Like -
Helpful -
Hug
4 ReactionsYou made a very wise decision, stopping the atypical hyperplasia cells from developing into cancer cells. Once the cells turn into cancer cells, you can never have the peace of mind that all cancer cells are gone despite all the treatments you receive. My hat is off to you!
-
Like -
Helpful -
Hug
2 ReactionsI had dense breasts and microcalcifications my entire life. In Dec. 2024 everything went south.
Invasive cancer plus 2 areas of atypical ductal hyperplasia in both breasts, age 70.
Yes, those 2 areas of hyperplasia were just waiting to turn cancerous. It was a no brainer for me, bilateral mastectomy in May 2025.
Everyone is different, your team must look at the whole picture/your mammogram history, etc....at the very least your abnormal areas must be monitored very closely, probably every 6 months.
If I were you, I would want peace of mind and have them surgically removed before these areas become "invasive cancer" as undoubtedly mine did. Again, it's a personal decision. But my oncology wanted them removed. I have no regrets at all. This is only my personal story. Do what's right for you, what's in your mind and heart and trust your instincts. The very best of luck to you!
-
Like -
Helpful -
Hug
3 Reactions@aeso2351
Would like to know what you decided to do. I am in the same boat now. Breast surgeon ordered a breast MRI so I am doing research on whether the results can inform surgery vs. monitoring. I was on hormone replacement therapy (which could be a cause of the hyperplasia) for a year and stopped it after the diagnosis.
@drummergirl
Hi, glad your daughter didn't have to go through surgery and her ADH went away without treatment. If you don't mind sharing the decision behind going the monitoring route? Did your daughter get a breast MRI? Did her doctor give her a choice between surgery and monitoring?
I recently got diagnosed with ADH but the pathology report indicated 'mild and low-grade'. Breast surgeon ordered a breast MRI (3 weeks out, ugh, more waiting) but she said surgery would still be the next step. This is very anxiety inducing. 🙁
Thanks for your time.
@travelbugtwiggy
Would be so happy to share more, but my daughter is 50 and lives in another state. Really not sure what was done and how decisions were made, but it went away very quickly after it appeared. She still just monitors.
I know how worrying it can be. Keep asking questions until you are comfortable.