I have an ANA of positive speckled at 1:80 .

My ANA was 170 if I’m not mistaken. I have tons of pain. Was diagnosed with erosive arthritis in hands and feet. Sometimes I could cry because the pain is so bad. I try all kinds of topical ointments, Tylenol, tiger bomb, magnesium spray, prayers, deep breathing. Just recently My rheumatologist noted that my uric acid was high, so I am now starting a med for gout. Please Lord, let that help! Yes, I looked tired and I am tired, I feel like I’ve aged 20 years in the past three years.. I thought I had lupus too. I think sometimes it doesn’t show up right away or it can be drug induced lupus if my memory serves me right. I was on biologics For microscopic colitis with horrible side effects… That was the start of my downhill slide.

@suecutuli
You are not alone. I have also had positive ANA and many symptoms but dismissed by multiple doctors, including rheumatologists. My mom had lupus and rheumatoid arthritis, etc.

I do have undiagnosed hEDS and was told by a neurologist he thinks I have it due to my hypermobility. My lack of control of my joints causes me to injure myself frequently. This causes me all sorts of pain.

You may be any to continue to look into mixed connective tissue disorders (I think I have this, too). Many have positive ANA but if you didn’t have this before, something is changing in your body and causing pain/overall lack of feeling well. You may have inflammation and there are diets that can help. Seek help from a nutritionist/dietician to look at diet and supplements to reduce inflammation.

1. https://www.ehlers-danlos.com/what-is-eds/hypermobile-ehlers-danlos%20-syndrome-heds/
2. https://www.ehlers-danlos.org/information/exercise-and-movement-for-adults-with-hypermobile-ehlers-danlos-syndrome-and-hypermobility-spectrum-disorders/
3. https://nydnrehab.com/blog/patients-guide-to-hypermobile-ehlers-danlos-syndrome/
4. https://www.hypermobilitymd.com/post/healthcare-tips-for-ehlers-danlos-syndrome
5. https://www.medcentral.com/pain/hypermobile-ehlers-danlos-syndrome-update-therapeutic-approaches-pain-management

I had a high ANA and strange pains and was told I had Lupus and would die within 5 years. My research suggested Lyme. I had to fight to get treated but did get treated. It took a year of meds but my ANA went back to normal. That was over 25 years ago and I am still kickin’. Consider tickborne diseases.

I have a nine year history of Hashimoto thyroiditis. I have an intermittent nine year history of anemia. I have had eye infections, including styes twice. I have been exhausted for over eight years intermittently. . I have had eye infections, including styes twice. I have had exhausted for over eight years intermittently. Many facial rashes over the years…2025 March, severe burning facial rash around mouth cheeks and lips. A few lip ulcers. I have Been diagnosed with dry eyes and also have dry lips, and occasionally my mouth, a history of facial rashes. I have numbness in feet and hands I begin in 2024 a major Gastrointestinal issue with diarrhea that continues to this day all test negative colonoscopy endoscopy. I have foot metatarsal pain with swelling and I have an ANA at 180 rheumatologist says I don’t meet the NATIONAL criteria for lupus. YET, WANTS ME TO TAKE Hydrochloric Quinn? Why did she even agree to see me if she claims that my 180 ANA is negative LABS said it was positive. I’m very confused and I did not like her. She is a rheumatologist in Virginia Beach, Virginia,. She claims I don’t have lupus or sjorgens and everything I’m experiencing is separate and it’s probably all Hashimoto I disagree. I have felt bad for years and truly believe there’s more going on than just Hashimoto. I would love feedback from folks that have been positively diagnosed with lupus and advised me should I quit this exhaustive journey to find out if I truly have lupus or just leave it alone 68 year old, white female.