I had PCNS Lymphoma in 2022. I now have Oscillopsia as a result.

Posted by pfother @pfother, 2 days ago

I was diagnosed in early 2022 with PCNS Lymphoma on the brain stem. I had 9 cycles of chemo which consisted of high dose methotrexate and inflixumab. It killed the tumour and I have been cancer free ever since. However the scarring from the tumour has left impairments including double vision, ataxia, fine motor skills impairments to my right arm and leg, and worsening oscillopsia. I am content with most impairments and doing rehab weekly. However the oscillopsia is really affecting me, as it interferes with balance and vision. I am trialling different medications but so far no results. My specialist has made no promises, but all I can hope for is reducing the effects. I have tried baclofen, gabapentin and chlorpromazine so far but no result. Has anyone else dealt with Oscillopsia?

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