I found an answer to the pain and burning at night, I hope that it you

Posted by schwartz @schwartz, Feb 19 2:33pm

Although I do not have celiac disease and I am not diabetic, I found that going on a gluten free diet stopped the burning sensation in my legs at night, but it did not stop the pain. I am now on an anti-inflammatory and gluten free diet and although I still have the peripheral neuropathy, the pain and burning is GONE. It is not easy to make this change but for me it was well worth the effort. Google anti-inflammatory diets and strictly follow it. It will work quickly. Sugar is your enemy, as is wheat, rye and barley, along with many other things. Unless medical science finds a cure for pn, I will have live with it, but changing my diet has STOPPED the pain and burning.

Interested in more discussions like this? Go to the Neuropathy Support Group.

@schwartz
I never noticed any difference in my symptoms getting better or worse eating the foods you mentioned. I stopped sugar once but no difference. Curious
Jake

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I just looked over my health journal and so many symptoms have stopped since I have been on the AIP diet! My knees and hands don't hurt from arthritis and a lot of the burning and pinprick sensations have stopped. I have mild numbness and tingling in hands and feet, that's it. Thanks for sharing. My husband thinks I'm making this stuff up. 😛

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If you no longer have pain and burning, do you mind if I ask what symptoms of PN do you have left? Getting rid of pain and burning would be wonderful for most people

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Sounds interesting. I have heard that eating gluten free can help alleviate many of our health problems. I think I will give it a try.

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@daj3333

If you no longer have pain and burning, do you mind if I ask what symptoms of PN do you have left? Getting rid of pain and burning would be wonderful for most people

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I am an 87 year old female and about 5 years ago I took a very bad fall which caused 5 compression fractures in my upper spine. About a year later numbness started in my feet and slowly worked its way up to the top of my knees. About 5 months ago I started getting tingling and mild numbness in both my arms and hands. I am very unsteady on my feet and I must use a walker. I also have very bad osteoporosis which caused 3 additional vertebrae to collapse and required a medical procedure where they injected a filler into my those 3 vertebrae in my spine. I am mentioning my medical history because I personally believe that my pn has been caused by the problems with my spine. I exercise (Utube “Ease peripheral neuropathy in feet and legs” and walk a short 2 blocks to the local park and back every day. My diet is gluten free and anti-inflammatory.
The pain and burning that I once felt would be at night and wake me up. The burning stopped when I started the gluten free diet and when I started the anti-inflammatory diet I no longer had the pain. I hope that there is someone out there that this information will help. Previously I have tried Alpha-Lipoic Acid, NA R-Alpha Lipoic Acid, Curcumin Phytosome, Acetyl-L-Carnitine, NAC, Fish Oil and none of them helped me, but we are all different and they may help you and I am sure they have helped others.
I understand that there is no cure for pn and that it will get progressively worse but as crappy as this is, you only have to look around and see that there is a lot worse out there. Exercise and strict adherence to my diet plus a minimum of medication (3 100mg. of gabapentin a day) is what works for me. As you can see, I have tried many different things looking for that magic bullet. I am very, very grateful that I finally found things that helped me and want to share them with you and hope that they can help someone else.

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Anyone tried. Nerve Savior. Is it helpful or a waste of money? Help

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@mangito

Anyone tried. Nerve Savior. Is it helpful or a waste of money? Help

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Welcome @mangito, There is a discussion on the supplement Nerve Savior where others are discussing it - https://connect.mayoclinic.org/discussion/nerve-savior/.

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Me and all of my siblings have non-diabetic PN. My sister’s neurologist told her to try Vicks Vapor Rub on the feet at night. She has been doing this and says it helps a lot. I will get some Vicks and give it a try.

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@daj3333

If you no longer have pain and burning, do you mind if I ask what symptoms of PN do you have left? Getting rid of pain and burning would be wonderful for most people

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@daj3333
I can only speak for myself, but it's not as wonderful as you might think. Although it's nice not to have all the painful sensations any longer the neuropathy is actually getting worse. More nerve fibers die and the numbness gets worse. Less to no feeling which is dangerous. Also in my case the neuropathy caused ED, bowel, bladder issues and leg and other weekness.
Neuropathy can also effect the heart, lungs, circulation and blood pressure problems and worsening balance.
Jake

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I think there is a lot to be said about a gluten-free diet. A lady here reduced her seizures 60% when she took gluten out of her diet..
Jake

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