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I found an answer to the pain and burning at night, I hope that it you
Although I do not have celiac disease and I am not diabetic, I found that going on a gluten free diet stopped the burning sensation in my legs at night, but it did not stop the pain. I am now on an anti-inflammatory and gluten free diet and although I still have the peripheral neuropathy, the pain and burning is GONE. It is not easy to make this change but for me it was well worth the effort. Google anti-inflammatory diets and strictly follow it. It will work quickly. Sugar is your enemy, as is wheat, rye and barley, along with many other things. Unless medical science finds a cure for pn, I will have live with it, but changing my diet has STOPPED the pain and burning.
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Hey, Jake. Every time I mention a physical problem to any doctor - ophthalmologist, orthopedist, PCP, neurologist, urologist - the first thing they say is that it could be neuropathy related, almost without exception. I'm pretty sure some things are, like ED, bowel and bladder problems, vision, hearing... I guess I could say that depression is related, though in a different way.
BTW, my implant is great! It's like seeing an old friend you haven't seen for years.
Jim
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I agree Jim. I would think anything to do with pain might be associated with depression and neuropathy certainly qualifies. Many people with epilepsy also have depression, especially in people with frontal lobe syndrome (higher functioning processes.
I'm glad to hear the implant is working out well. My Trimix isn't working out quite so well. Sometimes it works sometimes not as well as it should and for the price, it certainly should work flawlessly every time. I don't think I'm courageous enough to have the implant although it probably would be the best option. Jim, I've heard differing stories, some people say they can no longer get a spontaneous erections, whereas other people say they can. Have you gotten any spontaneous erections?
Did you lose any sensitivity?
Take care,
Jake
I'm glad to hear the Anti-Inflammatory Diet is working for you! I have been on it since November and I have noticed a marked reduction in the burning sensations in my hands and feet. When I 'cheat' and have something with sugar, the next morning I'll feel a weakness in my legs and arthritis pain in my knees. Hang in there, you sound like a trooper.
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2 ReactionsThanks for sharing, good to know! I have had similar results and similar 'triggers'-- sugar, caffeine and peanut butter do me in. I was already off gluten and dairy due to stomach problems....probably related to the current neuropathy issues before I knew I had them.
I am an electronic engineer with PN of the feet and legs. I can assure you that anyone selling you red light therapy "starting" at $10,000 is a quack and is only in it for the money. Don't believe it! I have done the research and there are a few scientific papers claiming that red light at about 630 nm wavelength MAY help to regrow nerves. But nothing dramatic found. I have put together a very bright red 630 nm wavelength LED by using one 10 Watt red LED, one 10 Ohm resistor and a small 6 Volt DC plug-in power supply. (6 V, capable of up to one Amp). You can buy all 3 of these items for less than $10 ! Parts available at many places including MPJA.com I have just started using this on my feet twice a week and will report on it in a few months. LED is here: https://www.mpja.com/350-Lumen-10-Watt-Super-Bright-Red-LED/productinfo/31515+OP/
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3 ReactionsHi crossette, the $10,000 was for stem cell therapy along with red light therapy, NO, I did not fall for it. However I did buy on Amazon a pair of red light slippers. I have used them for about 5 days twice per day for 1/2 hour. Not sure if they are helping, my feet do feel different (better) I have no pain just burning and tingling in feet and legs along with gait and balance issues. BUMMER!!!! I realize there is no magic pill for idiopathic PN. I am out $230.00 if slippers do not work. They are nice and toasty warm when on and no harm can be done. Thanks for your response. Good luck with your troubles.....
I've read most of the red light research papers and there is some significant data indicating benefit, though how much and for how long remains to be demonstrated. I agree with you that the devices on the market are vastly overpriced and overhyped. Please keep us posted on your results with your own device. According to most data I've seen, however, I think you would need to use it jore than twice a week on your feet to give it a fair shot. Daily would be better.
Thank you for sharing details for creating a custom "red light therapy" parts needed. I hope your device will help you, and many others! It is difficult to visualize how you put it together and how to use it. If not too much trouble, is there is a means to share a link with photos of how it looks and how to put it together and use it? I have a relative who is interested in giving it a try! Thank you for your help.
@taterjoy Here is a schematic showing the 3 parts with a parts list. You will need to solder the connections and cover them with heat shrink tubing or electrical tape. There is no danger of shock at 6 Volts. The LED and resistor may get slightly warm or not. Just keep checking it to be sure you don't burn your skin. Mine runs cold using a 10 Ohm resistor. A 5 Ohm may create more heat. To use it just place it against your skin in the targeted area and run for 10 minutes. Then move to another area if wanted. So far I have seen no change but I just started using it once every 2 or 3 days. The photo shows how mine looks. The resistor is in black heat shrink tubing so you can't see it.
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3 ReactionsSufro neuropatía periférica,pero sin dolor ni ardor por ahora.El problema es el equilibrio.La falta de movimiento agudiza el desequilibrio.Pero doy gracias a Dios que no hay dolor.
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