1. < Neuropathy
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I feel like giving up

Posted by bigjohnscho @bigjohnscho, Aug 14 5:49am

I don’t think my GP fully understands peripheral neuropathy and therefore is unable to offer treatment advice. He eventually got me to see a nhs neurologist who seemed to dismiss my condition as fairly minor. I do not have medical insurance so where do I go. My condition is slowly getting worse.

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mimig77 | @mimig77 | Aug 26 3:40pm

The Dr. said Reynaud’s for my bright red painful toes on one foot. I was waking up nightly. I diagnosed myself with erythromelalgia/ neuropathy. Daily liquid omega 3s for body inflammation,and a rotation of Aspercreme with lidocaine,Advil cream,foot exercises and Voltaren have all worked to somehow to stop the redness, painful tingling discomfort that used to wake me several times a night. All of these are available with no prescription. I hope you find some relief and don’t give up!

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bunnybear | @bunnybear | Aug 28 8:08am
In reply to @slowrunner1 "Hi bunnybear: All I can say is WOW! You may have come up with something that..." + (show)
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Hi bunnybear: All I can say is WOW! You may have come up with something that might help a lot of people without costing an arm and a leg to try out. However, anything that alters blood pressure or circulation ahould be approached with care. So be careful.

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Well, I talked to someone yesterday who says he sleeps with HOB up already, due to GERD, but still gets pain in his feet from peripheral neuropathy. All I can say is, I do get relief from icy painful feet by putting my HOB up. Perhaps it has something to do with severity of the disease.

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anniesezu812 | @anniesezu812 | Aug 29 9:11pm

I have peripheral Neuropathy, I can't tell you how to make it better but can only offer my own experience. Mine was greatly exacerbated by a Spinal cord stimulator, which is now removed.
After returning from hospital my leg / foot pain was much relieved after spending 2 nights on the electric pump devices used to stop blood clotting. I am going to purchase my own for home use...cost approx $45- 80 depending where you purchase. Also im using a lot of nerve related supplements . Nerves as we know regenerate very slowly. I can't promise this will help you but without insurance its not easy. Im refusing the usual nerve related pain meds because im concerned about long term effects on my brain. Of course if you can manage any daily exercise its very important. This is small advice but I hope it might be of some use. The leg device obviously improved my circulation a lot and did reduce my pain. Good luck.
PS Google foods that are known to help improve overall circulation.

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kathan55 | @kathan55 | Sep 5 1:23pm
In reply to @kathan55 "Hi there. My peripheral neuropathy started within a month of finishing chemo. I was having excruciating..." + (show)
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Hi there. My peripheral neuropathy started within a month of finishing chemo. I was having excruciating pain. That was 20 years ago. My first diagnosis was fibromyalgia and chronic myofacial pain. I was blessed to find pain management. Years later, I was diagnosed with chemo induced peripheral neuropathy. I have no idea if that’s right for you. But I understand from other people that acupuncture might help, massages, and some other type things- I’m not really sure what else.
I’ve continued to have pain and other symptoms all these years
( numbness and tingling in my legs and feet, muscle spasms, pain all over that’s unpredictable and moves around) and really haven’t had much luck with doctors either. They seem to believe me. But I just don’t think there’s a lot they can do for it.
I hope you get some results.
I know it can be disheartening. But hopefully you’ll find some kind of help.

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Thanks for your feedback!!

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gene1229 | @gene1229 | Sep 5 4:03pm

Currently taking 100mg 3 times daily of Lyrica for neuropathy. Get some relief, but with horrible side effects. Can’t seem to get answers from any Doctors.

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betspencer99 | @jeharper70 | Sep 7 1:05pm

Please don’t give up! I went through 5 doctors before I found neurosurgeons and neurologists who understood my rare peripheral nerve injury. It’s hard to be your own advocate but if you’re not getting a satisfactory answer from the treatment professionals you see, keep looking, researching, and seeing experienced nerve doctors like those at Mayo. You said you don’t have medical insurance and that is a limitation in the USA unfortunately, but it’s so important to find doctors who can help you understand your symptoms. Check the threads on this blog as well. It’s possible others have had similar experiences and can give you insight. Please keep trying—your health is most important.

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