I feel like giving up

I don’t have any of that.though I wear compression socks..but not with shorts

I’m not certain if you really talking about the British NHS as you do not require any insurance to receive treatment from them. I have had peripheral neuropathy for some years and what I do know is this sometimes in life there are things for which they really aren’t an effective treatment. That said one should never give up. I actively fight against it by keeping my weight down staying fit trying to find appropriate shoes and researching often my GP will regularly go online once I’ve spoken to her about something I’ve heard so she is proactive although she’s not a neurologist I wish you good luck in your search but never give up

For anyone whose peripheral neuropathy causes icy, or icy hot feet after going to bed, it was suggested to me that when you go to bed and lie flat, that is a big change in blood flow to the feet. When standing or sitting most of the day, blood pools to the feet and then when at night you bring your feet up in bed to a horizontal position, all of a sudden the feet are temporarily starved of blood flow causing the icy painful feeling. I have a mechanical bed frame so I tried simply raising the head of my bed enough where I could still be comfortable sleeping but was not flat. I think about 30degrees or a little more. This is closer to a standing position than lying flat. Sure enough I have not gotten any icy cold/hot feeling in my feet since I started doing this! I have found that mechanical bed frame SO worth the money for a number of reasons.

Been seeing a lot of promotion lately about Nano-socks and how great they are

600 Am
600 Pm
R ALA

Hi bunnybear: All I can say is WOW! You may have come up with something that might help a lot of people without costing an arm and a leg to try out. However, anything that alters blood pressure or circulation ahould be approached with care. So be careful.

The best part of this is my putting 2 + 2 together started with a comment, not by the doctor but by a nurse assistant, that “it makes sense that your feet get cold when you bring them up on the bed at night b/c all your blood pools down when you sit and stand most of the day and when you bring them up, the blood drains out” or words to that effect. I also wanted to add that the success of this may depend on how occluded your blood vessels are and how much you raise the head of bed. And also, that after you get your feet warmed up you can lower the head of bed. If anyone else has success or failure with this please reply.

Dear bigjohnscho

I know the feeling well. But in our better moments, we know giving up is not an option. Meditation and CBT have confirmed for me that giving up is not an option so I dropped all reference. I'd also find a more understanding neurologist. Even if that person doesn't have an answer, there seems to be a placebo effect. It doesn't sound like you want a fruitless search for a treatment, just someone who listens and knows what they're doing. Good luck!

My neuropathy has made quite an impact on my life, I choose however not to let it dominate my life. I have currently taken my cane out for its second walk hurting my pride but better that and falling and hurting my body. This may be pie in the sky, but I have started to use a large fan to cool me down to just about this side of comfortable with being cold ,prior to cooling down my legs felt stiff and I felt generally exhausted having cool down. I am walking better and don’t feel quite so exhausted. Don’t raise any flags yet as this may just be a coincidence, but I keep on trying and I think I probably always will keep up the fight. Don’t give in Margaret.

Well done Margaret, you did really well and it certainly gave me a lift.

John