Concerned about the side effects of anastrozole

Posted by tinalove @tinalove, Jan 31, 2016

I completed all treatments for breast cancer but now I am supposed to take hormone blocker, named anastrozole. im concerned about the side effects. Has anyone here taken it and did anyone have hair loss?

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@lcr2017

Thank you. My Oncotype score was also 8, so no chemo. And my risk at 9-10 year recurrence is 10%. My tumors were grade 2 and 3. I don’t know if they will do the Breast Cancer Index test to see if AI will continue or to try to determine risk of late occurrence.
My guess is I won’t continue because my oncologist said I only had a few more months to stick it out. But knowing there is a five year test is new to me. But baby steps! First step, MRI with breast surgeon. That has to be clear first, after which I will reconfirm what all my numbers meant when I see my oncologist and will also ask about this Breast Cancer Index test. I would like to have it done even if his plan is to discontinue the AI.

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My doc didn't know about the BCI three years ago but it is now NCCN approved. I had to bring it to my doc and tell them about it 🙂

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@windyshores

My doc didn't know about the BCI three years ago but it is now NCCN approved. I had to bring it to my doc and tell them about it 🙂

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Yes, I read that! And coincidentally, my surgeon’s office just called to tell me something and I asked about this test and she said hopefully, the doctor who will do my clinical exam before the MRI will know something about it. 🤞🏻

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@lcr2017

Thank you. My Oncotype score was also 8, so no chemo. And my risk at 9-10 year recurrence is 10%. My tumors were grade 2 and 3. I don’t know if they will do the Breast Cancer Index test to see if AI will continue or to try to determine risk of late occurrence.
My guess is I won’t continue because my oncologist said I only had a few more months to stick it out. But knowing there is a five year test is new to me. But baby steps! First step, MRI with breast surgeon. That has to be clear first, after which I will reconfirm what all my numbers meant when I see my oncologist and will also ask about this Breast Cancer Index test. I would like to have it done even if his plan is to discontinue the AI.

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"My Oncotype score was also 8, so no chemo. And my risk at 9-10 year recurrence is 10%.:"

I've seen the results of seversl OncotypeDX tests and I've never seen a result where the risk of recurrence is higher than the Recurrence Score. Are you sure that you're not conflating the Recurrence Score (which is a number) with the Risk of Recurrence, which is followed by the % sign on the report (and assumes one takes anti-hormone therapy)? If you are noting the correct numbers, could this be because two different tumors were tested?

As an example my Recurrence Score was 9 but "risk of loco-regionsl recurrence….9 years" was 3%.

Buy they really should use less similar names for the two results as the majority of customers' calls are about the confusing terminology.

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@callalloo

"My Oncotype score was also 8, so no chemo. And my risk at 9-10 year recurrence is 10%.:"

I've seen the results of seversl OncotypeDX tests and I've never seen a result where the risk of recurrence is higher than the Recurrence Score. Are you sure that you're not conflating the Recurrence Score (which is a number) with the Risk of Recurrence, which is followed by the % sign on the report (and assumes one takes anti-hormone therapy)? If you are noting the correct numbers, could this be because two different tumors were tested?

As an example my Recurrence Score was 9 but "risk of loco-regionsl recurrence….9 years" was 3%.

Buy they really should use less similar names for the two results as the majority of customers' calls are about the confusing terminology.

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Yes. The recurrence score was 6%, but the oncologist wrote down 10%. The cancer was bilateral and it was everywhere, but very early stage like an explosion (don’t even go there…because I always had my routine screenings…it’s a story ).

But it will all get sorted out at my appointment. But I am curious if they will discuss the Breast Cancer Index test.

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@lcr2017

Yes. The recurrence score was 6%, but the oncologist wrote down 10%. The cancer was bilateral and it was everywhere, but very early stage like an explosion (don’t even go there…because I always had my routine screenings…it’s a story ).

But it will all get sorted out at my appointment. But I am curious if they will discuss the Breast Cancer Index test.

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I understand that the surgeon might have felt the risk to higher due to extenuating factors, I just want to differentiate between the OncotypeDX Recurrence Score (RS) and the Risk of Recurrence. (ROR). The ROR is the only number alluding to odds, chance or actual calculated "risk" of recurrence.

I sure share your dismay over the discipline of routine screenings and a gobsmack-worthy surprise result!

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@lcr2017

Yes. The recurrence score was 6%, but the oncologist wrote down 10%. The cancer was bilateral and it was everywhere, but very early stage like an explosion (don’t even go there…because I always had my routine screenings…it’s a story ).

But it will all get sorted out at my appointment. But I am curious if they will discuss the Breast Cancer Index test.

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Again, my doc did not discuss the Breast Cancer Index but that was three years ago. I called the BCI company and got all the paperwork myself. I also worked with the lab to expedite sending tissues and requested a certain block, though that is not necessary. My doc said that going forward she is going to use the BCI. She did not know about it. Perhaps now with NCCN approval, more docs are using it. It is mentioned very frequently on breastcancer.org.

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