Trying to recover from a c.diff infection

Posted by acres @acres, Apr 12, 2016

I am trying to recover from a c.diff infection. This started with taking clindamycin in mid January and 3 days later I became ill with diarrhea and felt sick, loss of appetite etc…Went to the er twice, tested negative for c.diff on my 2nd visit. The Dr. told me to take imodium to rest my colon since I tested negative. That evening I had diarrhea and took the Imodium. Became constipated with pain lower right side. I went to a GI dr. pleading for help, I did another stool test and it came back positive for c.diff. I tried flagyl but could not tolerate the side effects. Tried vancomycin for 10 days. Did not work. Tested positive again, Went to a new gi doctor who prescribed dificid for ten days. I am 31 days post dificid and I have almost constant gut rumbling and urge to go. My 1st bm in the morning is usually semi normal, but after that they are always either pencil thin and or small pieces (2 to 5 times a day). This has been my routine since the vancomycin. I do not get dull blown diarrhea….. My dr. wants me to have a colonoscopy but I an scared that the cleansing will wipe out all my good flora. I currently take 2 florastor pills and 1/2 vsl3 per day. I eat fermented pickles for the probiotics as well….. I have many food intolerances since this whole mess began (fiber, many vegatables, dairy). I also have a strange taste in my mouth most of the time, have very little energy and fight with depression. My primary gave me Xanax .25 but I only take them at night when I cannot sleep…… Went to a nutritionist who put me on a no wheat, soy, dairy, gluten diet. Does not seem to be helping or hurting. I lost 20 pounds and cannot gain any weight (I weigh 120 at 5’7″)… I am thinking it might be sibo, or candida but cannot find a dr. to test for these….I am in the right place for help or advice ? The urge to go is awful and limits my once active lifestyle…..
Thank you, Scott

@wendyw

Paula please ask about Fecal matter transfers which have over 90%cure rate for C Diff.

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I don't think I have C-Diff. I think the Antibiotics that "Dr." Bender at the VA Hospital in Gainesville is what caused this. He left me on them for 2 solid years. It has damaged my bladder, stomach and intestines. I have been tested several times and it comes back negative.

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@taxpayinghorse

I don't think I have C-Diff. I think the Antibiotics that "Dr." Bender at the VA Hospital in Gainesville is what caused this. He left me on them for 2 solid years. It has damaged my bladder, stomach and intestines. I have been tested several times and it comes back negative.

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Yes the antibiotics create disbyosis in your intestinal flora. Killed the flowers and left the weeds.

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Can anything more be done? What do you know about this? Will it ever get better?

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@taxpayinghorse

Can anything more be done? What do you know about this? Will it ever get better?

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The VSL probiotics are a good place to start. I purchased it from Hannaford Supermarket’s Pharmacy. You have to ask the pharmacist for it as it is kept in a cooler.

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@taxpayinghorse

When you eat out, always eat a piece of bread if you can. Crackers are good too, do it before you leave for the restaurant. If you are going to a steak house and sit down to eat a nice steak, with baked potato with the sour cream and butter you are guaranteed to have diarrhea. It has something to do with the high fat content that will get your stomach rolling. By eating bread or crackers, it soaks up some of the acids in your stomach. Eating crackers or bread prior to my meal helps me and taking Calcium Polycarbophil before I eat also really helps. I take at least 3 tablets before each meal. Also Beano helps me too. You got nothing to lose if you try it.

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Makes sense. Thanks for sharing.

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Why wouldn’t you find a gastroenterologist and discuss fecal matter transfer. Rather than the last thing drs I’m Australia are finding excellent results achieved with curing c diff in the Majority of cases.
https://www.hopkinsmedicine.org/gastroenterology_hepatology/clinical_services/advanced_endoscopy/fecal_transplantation.html

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@taxpayinghorse

Can anything more be done? What do you know about this? Will it ever get better?

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I hope so because I am going through this now. I am on my second course of Flagyl and taking probiotics. I am undergoing a CT scan of lower GI track in two weeks, and then a colonoscopy if I continue to have symptoms. The GI doctor said that other causes for my problems may be ulcerative colitis, or microscopio colitis. I am not sure they know yet. We have to not give up and keep looking for answers.

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@taxpayinghorse

Can anything more be done? What do you know about this? Will it ever get better?

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I thought I posted a reply but it did not go through. Yes, to your question, but it is a process of trial and error. My GI doctor thinks I have SEBO and is treating me for that but I don’t think he knows for sure. They are treating symptoms. My next steps are CT scan of gut and possible colonoscopy. It is a long process to get answers and it is frustrating and isolating. I recently found blood in my stool which the doctor said could be the inflammation and diarrhea I have suffered for twelve weeks, I don’t have anemia at this point. I try to keep a positive attitude but often feel discouraged. Thanks to everyone for posting here and your support.

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I was having diarrhea and mild upper left abdomen pain. Weeks before my tongue became very dry and now had a white coating in the back that will not go away. It's not bacterial or fungal. I went to a GI for my bowel problems and they gave a colonoscopy and upper endoscopy which had good normal results. I also had blood and stool testing. I got results 24 hours AFTER colonoscopy. All results fine except I have c diff. I got vanco 125mg for 14 days. I'm on day 11 and the slight pain is still there, my stool is orange with black flakes in it and slightly loose. I'm nervous that the antibiotics are not working. Is this normal? I'm also scared to infect others. If first treatment doesnt work will symptoms intensify? My anxiety is through the roof and I cry daily. I lost a relationship with my girlfriend over this, I'm scared I'm going to lose my job, and I'm scared to die. Any info would be appreciated. Thanks for listening.

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@rtg103

I was having diarrhea and mild upper left abdomen pain. Weeks before my tongue became very dry and now had a white coating in the back that will not go away. It's not bacterial or fungal. I went to a GI for my bowel problems and they gave a colonoscopy and upper endoscopy which had good normal results. I also had blood and stool testing. I got results 24 hours AFTER colonoscopy. All results fine except I have c diff. I got vanco 125mg for 14 days. I'm on day 11 and the slight pain is still there, my stool is orange with black flakes in it and slightly loose. I'm nervous that the antibiotics are not working. Is this normal? I'm also scared to infect others. If first treatment doesnt work will symptoms intensify? My anxiety is through the roof and I cry daily. I lost a relationship with my girlfriend over this, I'm scared I'm going to lose my job, and I'm scared to die. Any info would be appreciated. Thanks for listening.

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Hello @rtg103,

Welcome to Connect. You may notice that I moved your discussion and combined it with this existing discussion as I thought it would be beneficial for you to be introduced to other members who are talking about c. diff and much of what you are experiencing.
If you click on VIEW & REPLY in your email notification, you will see the whole discussion and can join in, meet, and participate with other members talking about their or their loved ones' experiences.

I'm so sorry to hear about your anxiety, and glad that you've joined the Connect community – you will see that you aren't alone. Here is some information from Mayo Clinic that you may wish to read:
https://www.mayoclinic.org/diseases-conditions/c-difficile/symptoms-causes/syc-20351691

Another great resource is the Gastroenterology & GI Surgery Page on Connect, where Mayo Clinic experts talk about fecal transplants and much more: https://connect.mayoclinic.org/page/gastroenterology-and-gi-surgery/

@rtg103, could you share a bit about your diet before your symptoms, and at present?

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@guthealth

I thought I posted a reply but it did not go through. Yes, to your question, but it is a process of trial and error. My GI doctor thinks I have SEBO and is treating me for that but I don’t think he knows for sure. They are treating symptoms. My next steps are CT scan of gut and possible colonoscopy. It is a long process to get answers and it is frustrating and isolating. I recently found blood in my stool which the doctor said could be the inflammation and diarrhea I have suffered for twelve weeks, I don’t have anemia at this point. I try to keep a positive attitude but often feel discouraged. Thanks to everyone for posting here and your support.

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I have cdiff and the doctors dont tell much …this sight is great to learn how to deal with it

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@kanaazpereira

Hello @rtg103,

Welcome to Connect. You may notice that I moved your discussion and combined it with this existing discussion as I thought it would be beneficial for you to be introduced to other members who are talking about c. diff and much of what you are experiencing.
If you click on VIEW & REPLY in your email notification, you will see the whole discussion and can join in, meet, and participate with other members talking about their or their loved ones' experiences.

I'm so sorry to hear about your anxiety, and glad that you've joined the Connect community – you will see that you aren't alone. Here is some information from Mayo Clinic that you may wish to read:
https://www.mayoclinic.org/diseases-conditions/c-difficile/symptoms-causes/syc-20351691

Another great resource is the Gastroenterology & GI Surgery Page on Connect, where Mayo Clinic experts talk about fecal transplants and much more: https://connect.mayoclinic.org/page/gastroenterology-and-gi-surgery/

@rtg103, could you share a bit about your diet before your symptoms, and at present?

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My diet before c diff was not good. I ate out a lot. Mostly fast food. I drank soda, ate cookies, snack cakes, and potato chips daily. After c diff my only liquid intake is water and kefir probiotic drink. I eat fruits, vegetables, and lean meats. I snack on sugar free candies. I have developed folliculitis on my face and scalp as well as the white patch on my tongue and c diff. I am on my last day of my first (and hopefully last) course of vanco antibiotics. I take klonopin 0.5mg for my anxiety. I'm thinking of going to an infectious disease specialist and a nutritionist to help get me back on track. I'm also going to talk with my pharmacist about additional probiotics and prebiotics to help.

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@rtg103

My diet before c diff was not good. I ate out a lot. Mostly fast food. I drank soda, ate cookies, snack cakes, and potato chips daily. After c diff my only liquid intake is water and kefir probiotic drink. I eat fruits, vegetables, and lean meats. I snack on sugar free candies. I have developed folliculitis on my face and scalp as well as the white patch on my tongue and c diff. I am on my last day of my first (and hopefully last) course of vanco antibiotics. I take klonopin 0.5mg for my anxiety. I'm thinking of going to an infectious disease specialist and a nutritionist to help get me back on track. I'm also going to talk with my pharmacist about additional probiotics and prebiotics to help.

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How do you get rid of follicitice

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@gina1963

I have cdiff and the doctors dont tell much …this sight is great to learn how to deal with it

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I honestly don't think the doctors know much. All they seem to know is what they can read. Many don't seem to care in my opinion.

Liked by gina1963

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@taxpayinghorse

I honestly don't think the doctors know much. All they seem to know is what they can read. Many don't seem to care in my opinion.

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I think doctors know but don’t have the time to sit down and think. You typically have ten to fifteen minutes of their time, and only God knows how many patients they see every day. I think health care in this country has come to a bad place. Hard to get appointments, hard to schedule procedures and weeks go by waiting for a diagnosis. I am in that situation now. I finally got to see a GI who surmised by my symptoms that I have SIBO, put me on another round of antibiotics, and wants to do a CT scan of my GI. Every time I talk to a professional I get more questions than answers. I live with daily anxiety thinking I have an autoimmune disease or cancer and the clock keeps ticking. My PCP told me that the best diagnostic tool was the person’s response to treatment which will then guide the types of tests that are ordered as symptoms resolve or not. Yesterday I saw blood in my stool and freaked out. Yet my PCP said he was less concerned about that than if I had anemia. Ultimately we have to trust on someone who can guide us through this scary process.

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