Trying to recover from a c.diff infection

Posted by acres @acres, Apr 12, 2016

I am trying to recover from a c.diff infection. This started with taking clindamycin in mid January and 3 days later I became ill with diarrhea and felt sick, loss of appetite etc…Went to the er twice, tested negative for c.diff on my 2nd visit. The Dr. told me to take imodium to rest my colon since I tested negative. That evening I had diarrhea and took the Imodium. Became constipated with pain lower right side. I went to a GI dr. pleading for help, I did another stool test and it came back positive for c.diff. I tried flagyl but could not tolerate the side effects. Tried vancomycin for 10 days. Did not work. Tested positive again, Went to a new gi doctor who prescribed dificid for ten days. I am 31 days post dificid and I have almost constant gut rumbling and urge to go. My 1st bm in the morning is usually semi normal, but after that they are always either pencil thin and or small pieces (2 to 5 times a day). This has been my routine since the vancomycin. I do not get dull blown diarrhea….. My dr. wants me to have a colonoscopy but I an scared that the cleansing will wipe out all my good flora. I currently take 2 florastor pills and 1/2 vsl3 per day. I eat fermented pickles for the probiotics as well….. I have many food intolerances since this whole mess began (fiber, many vegatables, dairy). I also have a strange taste in my mouth most of the time, have very little energy and fight with depression. My primary gave me Xanax .25 but I only take them at night when I cannot sleep…… Went to a nutritionist who put me on a no wheat, soy, dairy, gluten diet. Does not seem to be helping or hurting. I lost 20 pounds and cannot gain any weight (I weigh 120 at 5’7″)… I am thinking it might be sibo, or candida but cannot find a dr. to test for these….I am in the right place for help or advice ? The urge to go is awful and limits my once active lifestyle…..
Thank you, Scott

@npkara

HI,
Im 30 yr old female caught c diff from overuse of antibiotics for UTI.first symptoms were just 1 or 2 loose watery D for few days and it stopped .After a week saw it again so did garlic enema to stop D.things turned upside down after the enema.I got severe lower right abdominal pain and severe nausea that I couldn't stand or sit.Ended up in the ER 2 times for the pain.But even then there is no severe D but my BM s are so different either C or D or mushy stools.
misdiagnosed for 1 month and finally tested positive for C Diff.was put on Vanco for 20 days, 4 x 250 mg for 10 days and 1 X 250mg for 10 days.(couldn't tolerate flagyl effects so switched to Vanco).now Im on 7th days of Vanco.

My Question is

1.How do I know that Im recovering from C Diff (my stools are mushy or D with 2
-3 BMs per day). is this normal while recovering.

2.I still have pain on my right side but subsided a lot.How long I will have this pain.

3.Nausea is gone and able to eat everything except got allergic to coconut water.

4.Im having excessive gas throughout the day.

5.Taking BIO k+ ,need suggestions on this.

6.im vegan and my diet contains usually fermented foods and yogurt ,fruits, diary and vegetables, but I still feel my diet is not helping me in recovering.

7.buzzing sound in rectum.

Any help is appreciated.This is really frustrating as me and my husband are TTC.Im really depressed and taking anxiety meds for this and literally crying all the day from 2 weeks and so sick of being sick.I want to be normal again asap.

Note: CT scan with ora contrast is done and normal,cbc is normal except slight increase in WBC,Haemoglobin is normal.ESR,CRP are normal, all stool tests for OVA Parasites is negative, no WBC or RBC in stool,PROmetheus IBD test is negative.
C DIFF is positive.

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@npkara – you still have a couple of weeks left on Vanco and you have improved relating to nausea and lower abdominal pain. It might take a while to improve stools, because the infection damages the intestinal lining and takes time to recover. Just stay with recommended treatments for now and follow up with MD at end of Vanco. My sympathy!

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@kanaazpereira

Hi @npkara,

I'm really sorry to hear about your symptoms, and can imagine how upset you must be!
You may notice that I moved your message and combined it with this existing discussion on C.Diff. I did this as I thought it would be beneficial for you to meet the many members who have discussed much of what you are experiencing.
If you click on VIEW & REPLY in your email notification, you will see the whole discussion and can join in, meet, and participate with other members talking about their or their loved ones' experiences.

Contrary to widespread belief that because it is natural it is safe, herbal remedies can carry major risks and produce serious side effects.
While we wait for members to respond, may I ask if you could share more about the garlic enema? Did you do it as a colon cleanse? Have you informed your doctor?

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Yes I informed my doctor, I read it in google ,I was actually having C Diff infection by the time I have done garlic Elena which I wasn’t aware of. I’m very much worried about CDiff recovery.can I ever get rid of it.

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Rifaximin is an off-label treatment with minimal side effects, but fecal transplant is a proven cure. Works immediately but you may have to eat specially to rebuild the gut cilia that C. Diff. cytotoxins destroy. High fat diet for a week then high carb, then add proteins. Miracle!

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@concernedmtnmom

Rifaximin is an off-label treatment with minimal side effects, but fecal transplant is a proven cure. Works immediately but you may have to eat specially to rebuild the gut cilia that C. Diff. cytotoxins destroy. High fat diet for a week then high carb, then add proteins. Miracle!

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@aconcerncedmama yes I heard the same thing that it is a proven cure I hope she talks to Dr.about it ,for it is hard to cure medically

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@kanaazpereira

Hello @gstill,

Welcome to Connect. I moved your message and merged it with this active discussion on C.diff. so that you can meet the many members who have discussed much of what you are concerned about.
If you click on VIEW & REPLY in your email notification, you will see the whole discussion and can join in, meet, and participate with other members talking about their or their loved ones' experiences.

@tammy1pike has shared so much about her son's experiences with regard c. diff. and Fecal Microbiota Transplant (FMT); if you scroll through this very discussion you can read her posts. I’m also tagging @concernedmtnmom @acres @momochan @citygirlannie @elbb29 @kyjeanne @dodgerblu818311 who may have some thoughts for you.
I think you might find some good information about FMT on the Gastroenterology & GI Surgery Page, too https://connect.mayoclinic.org/page/gastroenterology-and-gi-surgery/

@gstill, how are you coping with this infection, at present? Have you tried taking any probiotics? What is your biggest concern about fecal transplant? We do look forward to getting to know you better.

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Kanaaz, My cDiff infection is gone, but I have been left with awful flushing of my head, neck and arms that wakes me every hour, making it impossible to sleep. A CT scan was done, showing that I now have enteritis and I have been prescribed Xifaxin for 14 days. I am fearful that this will bring my cDiff back. Anyone have an idea of what could be causing the flushing? Has anyone been diagnosed with enteritis and taken this drug? Any advice/information or ideas are very welcome.

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@kanaazpereira

Hello @gstill,

Welcome to Connect. I moved your message and merged it with this active discussion on C.diff. so that you can meet the many members who have discussed much of what you are concerned about.
If you click on VIEW & REPLY in your email notification, you will see the whole discussion and can join in, meet, and participate with other members talking about their or their loved ones' experiences.

@tammy1pike has shared so much about her son's experiences with regard c. diff. and Fecal Microbiota Transplant (FMT); if you scroll through this very discussion you can read her posts. I’m also tagging @concernedmtnmom @acres @momochan @citygirlannie @elbb29 @kyjeanne @dodgerblu818311 who may have some thoughts for you.
I think you might find some good information about FMT on the Gastroenterology & GI Surgery Page, too https://connect.mayoclinic.org/page/gastroenterology-and-gi-surgery/

@gstill, how are you coping with this infection, at present? Have you tried taking any probiotics? What is your biggest concern about fecal transplant? We do look forward to getting to know you better.

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Hi @gstill,

I saw that you were prescribed Flagyl to treat the C.difficile, which could probably be a cause for the flushing. https://www.medicinenet.com/side_effects_metronidazole_flagyl/article.htm#what_is_metronidazole_flagyl_flagyl_er

I'm tagging @loriel59 @jlfisher56 @techmom @amyintucson @coffeelatte to see if they might have more information to share about enteritis and Xifaxin.

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@kanaazpereira

Hello @gstill,

Welcome to Connect. I moved your message and merged it with this active discussion on C.diff. so that you can meet the many members who have discussed much of what you are concerned about.
If you click on VIEW & REPLY in your email notification, you will see the whole discussion and can join in, meet, and participate with other members talking about their or their loved ones' experiences.

@tammy1pike has shared so much about her son's experiences with regard c. diff. and Fecal Microbiota Transplant (FMT); if you scroll through this very discussion you can read her posts. I’m also tagging @concernedmtnmom @acres @momochan @citygirlannie @elbb29 @kyjeanne @dodgerblu818311 who may have some thoughts for you.
I think you might find some good information about FMT on the Gastroenterology & GI Surgery Page, too https://connect.mayoclinic.org/page/gastroenterology-and-gi-surgery/

@gstill, how are you coping with this infection, at present? Have you tried taking any probiotics? What is your biggest concern about fecal transplant? We do look forward to getting to know you better.

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I am using Xifacin on a daily basis to treat Hepatic Encephalopathy as indicated by high ammonia levels in the blood. Have not been told I have enteritis. Have had numerous esophageal varices banded over the past 4 years but nothing noticeable in the intestine except ongoing discomfort after eating.

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In January, I had a seven day course in antibiotics for a sinus infection. In February, I was taken to emergency with high blood pressure, severe pain under right breast, and severe nausea. I was given a sonogram for upper right abdomen, a series of blood tests, and sent home with high blood pressure meds which were discontinued (per primary care dr) two days later because blood pressure was tanking. Serious nausea and pain persisted through Feb. and into March and I was barely mobile. Went to gastro who appeared not concerned and said he thought perhaps a nerve or muscle was the cause of pain and said I needed to lose weight (5’3, 145 lbs then). Since I have gerd, hiatal hernia, and diverticulitis, I asked him about nexium and he gave me a prescription. My primary care does not like proton pump inhibitors so together we chose Prilosec as least offensive instead of Nexium because of lower. MG. About 7 days later, still with pain and nausea, I developed a urinary infection with blood in urine. Gastro prescribed Bactrim and the night I took ONE pill I woke up thinking I was going to die and didn’t know what to pray for! Nausea and pain unbearable so back to emergency room. They did a CT scan of the upper abdomen, gave me morphine, told me to continue Bactrim (which I didn’t) because of the urinary infection with blood, said that I had a lot of stool in my colon and gave me a laxative which they said would literally bomb me out. Five days later and no movement, I went back to Miralax with some success, but the pain and nausea were still present. Went to an orthopedic screener per gastro, and he said he thought the problem was digestive. At this point, after having no appetite, I was starting to feel a bit betterheading into April. No one suggested c diff screening, I guess, because I wasn’t presenting with normal symptoms. Finally I got an appointment with a holistic doctor who did a stool test where c diff flagged. I was feeling almost normal, and it was May. I’d begun eating and actually had an appetite but was down to 120 lbs. We wanted to start with probiotics and supplements but the probiotic was so strong, I developed frequent bowel movements (for me, not necessarily a bad thing!) and nausea which finally stopped two weeks later. 30 day restricted diet ends tomorrow, but feeling pretty normal, although I did the beginning of June. So, my question is, with all my continued improvement, can a body heal itself of c diff naturally? All my intestinal bacteria scored in the normal range at the same time as the c diff toxins flagged! And I’m feeling so close to normal now, with no pain or nausea for the most part. Took all info to my primary care who ordered another stool test to verify before starting antibiotics. I’d appreciate any feedback about the possibility of body healing itself vs antibiotics at this stage. Thank you for the opportunity to post.

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@mosey You have sure been sick Hi I'm Linda a retired nurse also believes in holistic medicine In glad the holistic Dr made you feel better my question to you is why do you want to begin antibiotics? Sounds like your doing fine without them our bodies can heal themselves if we give them clean ,natural foods .Do you know the dangers of antibiotics and intestinal problem s The Dr. Will tell you that to many antibiotics can cause intestinal problems as well as other problems when you take to many Eating organic foods ,drinking good water ,going out in nature , getting your Vi t D from sunshine goes along way to healing the body Antibiotics are good when needed but you don't want to overdo them

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@lioness

@mosey You have sure been sick Hi I'm Linda a retired nurse also believes in holistic medicine In glad the holistic Dr made you feel better my question to you is why do you want to begin antibiotics? Sounds like your doing fine without them our bodies can heal themselves if we give them clean ,natural foods .Do you know the dangers of antibiotics and intestinal problem s The Dr. Will tell you that to many antibiotics can cause intestinal problems as well as other problems when you take to many Eating organic foods ,drinking good water ,going out in nature , getting your Vi t D from sunshine goes along way to healing the body Antibiotics are good when needed but you don't want to overdo them

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Mosey read above post from mine

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@lioness

@mosey You have sure been sick Hi I'm Linda a retired nurse also believes in holistic medicine In glad the holistic Dr made you feel better my question to you is why do you want to begin antibiotics? Sounds like your doing fine without them our bodies can heal themselves if we give them clean ,natural foods .Do you know the dangers of antibiotics and intestinal problem s The Dr. Will tell you that to many antibiotics can cause intestinal problems as well as other problems when you take to many Eating organic foods ,drinking good water ,going out in nature , getting your Vi t D from sunshine goes along way to healing the body Antibiotics are good when needed but you don't want to overdo them

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Thanks so much for your response, Linda. I’m not 100% but so much better than Feb and March! Trying to renter sensitive foods at this point. I don’t want the antibiotics but primary care suggested we do stool test to see if it computes. Holistic dr did dna stool test, not enzyme test, which indicated exposure to c diff, and with the 5 month history, made sense. It may or may not be active now. Drs looked at everything else from gallstones to kidney stones to constipation, etc to identify abdominal pain and constant nausea. Hoping my body continues healing. Off yeast, and all yeast products, sugars and dairy except kefir, caffeine and I’m hungry but doing my best. Just trying now to renter eggs. @lionness

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@lioness

@mosey You have sure been sick Hi I'm Linda a retired nurse also believes in holistic medicine In glad the holistic Dr made you feel better my question to you is why do you want to begin antibiotics? Sounds like your doing fine without them our bodies can heal themselves if we give them clean ,natural foods .Do you know the dangers of antibiotics and intestinal problem s The Dr. Will tell you that to many antibiotics can cause intestinal problems as well as other problems when you take to many Eating organic foods ,drinking good water ,going out in nature , getting your Vi t D from sunshine goes along way to healing the body Antibiotics are good when needed but you don't want to overdo them

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@mosey is eggs one of the foods giving you problems? They have a lot of protein in them

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@lioness

@mosey You have sure been sick Hi I'm Linda a retired nurse also believes in holistic medicine In glad the holistic Dr made you feel better my question to you is why do you want to begin antibiotics? Sounds like your doing fine without them our bodies can heal themselves if we give them clean ,natural foods .Do you know the dangers of antibiotics and intestinal problem s The Dr. Will tell you that to many antibiotics can cause intestinal problems as well as other problems when you take to many Eating organic foods ,drinking good water ,going out in nature , getting your Vi t D from sunshine goes along way to healing the body Antibiotics are good when needed but you don't want to overdo them

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@lioness I love eggs and used to eat a lot of them. Never knew I had an egg sensitivity, but it tested high. Now we are trying them to see if I have a reaction after 30 days off. I have no idea what I’m looking for but I’m to give it 5 days to see if I notice anything different. I am not allergic to eggs. This has been the hardest thing for me to abstain from.

Liked by lioness

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Recently we visited a gastroenterologist regarding using Fecal matter Transfer as a possible cure for his ulcerative colitis. He did mention the fantastic results they are having using this treatment for C Diff. Over 90% cure rate. Best wishes to all of yiu

Liked by lioness, mosey

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@lioness

@mosey You have sure been sick Hi I'm Linda a retired nurse also believes in holistic medicine In glad the holistic Dr made you feel better my question to you is why do you want to begin antibiotics? Sounds like your doing fine without them our bodies can heal themselves if we give them clean ,natural foods .Do you know the dangers of antibiotics and intestinal problem s The Dr. Will tell you that to many antibiotics can cause intestinal problems as well as other problems when you take to many Eating organic foods ,drinking good water ,going out in nature , getting your Vi t D from sunshine goes along way to healing the body Antibiotics are good when needed but you don't want to overdo them

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@mosey I know when my son was small he couldn't eat the egg whites but he's 43and eggs don't bother him at all maybe being of for awhile will do the trick for you.Do you eat the organic eggs from free range chickens? If not maybe it's what th st feed by in those chicken factories or where ever they keep them?I've been thinking of your situation and wanted to tell you there is a great way to start to detox your liver and you make a cuppa hot or cold tea , ,fresh water,lemon juice ,from lemon,Tumeric to taste add some Stevia if you want sweeter Lemon juice from fresh lemons only not store bought .

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